The Patient-Centered Outcomes Research Institute (PCORI) is a nonprofit, nongovernmental organization located in Washington, DC. Congress authorized the establishment of PCORI in the Patient Protection and Affordable Care Act of 2010.
Our mandate is to improve the quality and relevance of evidence available to help patients, caregivers, clinicians, employers, insurers, and policy makers make informed health decisions. Specifically, we fund comparative clinical effectiveness research, or CER, as well as support work that will improve the methods used to conduct such studies.
The goal of our work is to determine which of the many healthcare options available to patients and those who care for them work best in particular circumstances. We do this by taking a particular approach to CER called Patient-Centered Outcomes Research, or PCOR, research that addresses the questions and concerns most relevant to patients, and we involve patients, caregivers, clinicians, and other healthcare stakeholders, along with researchers, throughout the process.
This approach is reflected in our vision:
Patients and the public have information they can use to make decisions that reflect their desired health outcomes.
And our mission:
PCORI helps people make informed healthcare decisions, and improves healthcare delivery and outcomes, by producing and promoting high-integrity, evidence-based information that comes from research guided by patients, caregivers, and the broader healthcare community.
In pursuing our mission and seeking to achieve our vision, we're building on the work of others. We're not the first organization to fund CER to improve outcomes in conditions that affect large numbers of people or pose a substantial burden on society. Nor are we the first funder to pay attention to the views of patients and other healthcare stakeholders in our work. But we are the largest single research funder that has CER as its main focus, and we incorporate patients and other stakeholders throughout the process more consistently and intensively than others have before. We call this "research done differently."
Posted: October 6, 2014