Public Comments - Submissions

Peer Review Process Comments

Name of person or organization submitting comments: CaReNet

Please identify which stakeholder group you represent: Patient/Caregiver Advocacy Organization

Registration at ClinicalTrials.gov, RoPR, or PROSPERO

I am well familiar with ClinicalTrials.gov and would easily be able to look for PCORI's process there.

Production of a draft final report, scientific abstract, and standalone results table This makes a lot of sense.

PCORI peer review process of the draft final report I like this this idea.

Providing a version of the results summary that will be useful and comprehensible for use by patients and the general public Excellent idea.

Submission of results table to ClinicalTrials.gov and/or other sites as appropriate, with a link to the abstract and standalone results table on PCORI’s website Great!

Public posting of full final reports on PCORI’s website very good

Awardee institution notification to PCORI of submission to journals and subsequent publication of papers resulting from funded projects yes

Timeline of the proposed peer review and public release process It seems reasonable

Please rate how well the proposal meets PCORI’s obligations under its authorizing legislation Very Well

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Please rate how well the proposal provides a clear understanding of the peer review and public release process Very Clear

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Please comment on the proposal’s feasibility given any competing obligations that awardee institutions funded by PCORI, or their investigators, may face.

The law requires that PCORI both conduct peer review of our funded primary research and make it available publicly within a specific timeframe. We propose to conduct peer review first, then post the results, so they can benefit from the review process. Do you agree or disagree with the sequencing of this process? Strongly Agree

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as long as the patient/public version is readily available as quickly as possible

Please provide any additional comments that you have not already provided about any aspect of this proposal.

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