PCORI at Health Datapalooza 2017

Date:
  • -
Location:

Washington Hilton, 1919 Connecticut Avenue NW, Washington, DC, 20009, United States

Health Datapalooza brought together a diverse audience of over 1,600 people from the public and private sectors to learn how health and health care can be improved by harnessing the power of data.

View the conference website for the full agenda.

Thursday, April 27

Concurrent Session #1: Innovations in Consumer Engagement

Session Time: 4:15 p.m. – 5:30 p.m.

  • Moderator
    • Hank Fanberg, CHRISTUS Health
  • Panelists
    • Mary Ray, MyHealthTeams
    • Mellanie True Hills, StopAfib.org; PCORnet Health eHeart Alliance (PPRN)
    • Geeta Wilson, Humana
    • Kathleen Zook, Office of the National Coordinator for Health IT (ONC)

Concurrent Session #4: Health Systems Reaching Out to Patients and Providers

Session Time: 4:15 p.m. – 5:30 p.m.

  • Moderator
    • Cherie Binns, Multiple Sclerosis Certified Nurse and PCORI Ambassador; PCORnet Engagement Committee Member
  • Panelists
    • Megan O'Boyle, Phelan-McDermid Syndrome Foundation; PCORnet Phelan-McDermid Syndrome Data Network
    • Neil Evans, Department of Veterans Affairs
    • Ian Morris, The State of Mississippi, Division of Medicaid (DOM)
    • Jessica Sweeney-Platt, athenahealth

Friday, April 28

Concurrent Session #4: PCORnet, a PCORI Initiative: Integrating the Patient's Voice in Data

Session Time: 8:45 a.m. – 10:00 a.m.

Through patient-engagement in data and research network development, the National Patient-Centered Clinical Research Network (PCORnet) has key lessons learned that can be shared with the broader research community. Patients are key to the development and success of PCORnet. Each topic area will present lessons learned with engaging patients in research:

  • Patient involvement in the research infrastructure development of an individual Clinical Data Research Network (CDRN)
  • Patient involvement in the development of PCORnet’s Data Governance
  • Role of the Collaborative Research Groups in developing a patient-centered data infrastructure
  • Moderator
    • Lesley Curtis, PCORnet Coordinating Center
  • Panelists