Clinical Data and Patient-Powered Research Networks – Awarded Projects
The Patient-Centered Outcomes Research Institute (PCORI) approved $93.5 million on December 17, 2013, to support 29 clinical research data networks that together will form an ambitious new resource known as PCORnet, the National Patient-Centered Clinical Research Network. PCORnet will be a large, highly representative, national network for conducting clinical outcomes research. PCORnet will integrate data from 11 Clinical Data Research Networks (CDRNs) — networks that originate in healthcare systems such as hospitals, health plans, or practice-based networks and securely collect “real-time,” “real-world” health information during the routine course of patient care – and 18 Patient-Powered Research Networks (PPRNs) — networks operated and governed by groups of patients and their partners who are focused on a particular condition and interested in sharing health information and participating in research.
Clinical Data Research Networks:
Patient-Powered Research Networks:
Posted December 17, 2013; Updated March 24, 2014