Advisory Panel on Rare Disease

The Advisory Panel on Rare Disease will advise and provide recommendations to PCORI on the conduct of PCOR in rare disease. The group will also help to facilitate productive collaboration and engagement with the rare disease research community.

The charter for the Advisory Panel on Rare Disease was approved by the PCORI Board of Governors on November 18, 2013.

Ad Hoc Advisory Panels

Moreover, the panel members will help PCORI identify experts to serve on condition-specific ad hoc advisory panels to provide additional expert input on specific potential research studies. They will assist in evaluating, designing, and conducting PCOR-funded research and determining the relative feasibility of conducting the research study.

Advisory Panel Members 

Advisory Panel Meetings

Posted November 22, 2013; Updated May 1, 2014