Biographies - Advisory Panel on Rare Disease
Advisory Panel on Rare Disease
Panelists are approved by PCORI's Board of Governors during its public meetings
- July 26, 2022
- September 27-28, 2021
- September 14-15, 2020
- August 20, 2019
- August 21, 2018
- August 15, 2017
- August 16, 2016
- April 21, 2015
- February 25, 2014
- March 26, 2013
Ex-Officio Member from PCORI’s Methodology Committee
Former Advisory Panel Members
Class of 2020-2023
- Sarah Bacon, MS
- Danielle Boyce, MPH, DPA
- Mathew J. Edick, PhD (Former Chair)
- Salman Hussain, MPH
- Nancy Rose, MD
- Laura Tosi, MD
Class of 2019-2022
- Doug Lindsay (Former Co-Chair)
- Saira Sultan, JD
Class of 2018-2021
- Scott Berns, MD, MPH (Former Chair)
- Roxanna Bendixen, PhD, MS
- Vanessa Boulanger, MSc
- Julie Gortze, RN
- Tilicia Mayo-Gamble, PhD, MPH, MA
- Sherene Shalhub, MD, MPH
Class of 2017-2020
- Julie Abramson, MS
- Cindy Luxhoj, MUP (Former Co-Chair)
- Stephen Mathai, MD
- Marcia Rupnow, MS, PhD
Class of 2018-2019
Class of 2016-2019
- Matt Cheung, PhD, RPh (Former Chair)
- Kathleen Gondek, MS, PhD
- Maureen Smith, MEd
Class of 2015-2018
- Vincent Del Gaizo
- Patricia Furlong
- Lisa Heral, RNBA,CCRC
- YaffaR. Rubinstein, MS, PhD
- James J. Wu, MSc, MPH
Class of 2016-2017
Class of 2014-2017
- Marilyn Bull, MD, FAAP
- Uday U. Deshmukh, MD, MPH
- Sindy N. Escobar-Alvarez, PhD
- Kate Lorig, MS, MPH, DrPH
- Mark W. Skinner, JD
- Marshall L. Summar, MD
Class of 2014-2016
- Jacqueline Alikhaani, BA, MBA Candidate
- Mardi Gomberg-Maitland, MD, MSc
- Philip W. Ruff, PhD, BSc, CChemMRSC, CSci
Class of 2013-2015
Posted: March 25, 2014; Updated: September, 2023