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Engagement in Research Project

CCCC 2017 Palliative Care Summit

Shirley Otis-Green, LCSW, ACSW, OSW-C | Coalition for Compassionate Care of California
Engagement in Research Project

Real World Data Research Readiness: Engaging the Prader-Willi Syndrome Community

Theresa Strong, PhD | Foundation for Prader-Willi Research
Engagement in Research Project

The Future of Patient-Centered Medical Education

Lawrence Chu, MD, MS | Stanford University
Engagement in Research Project

Building Momentum Through Congenital Muscular Dystrophy Stakeholder Participation

Anne Rutkowski, MD | Cure CMD
Engagement in Research Project

Novel Stakeholder Engagement for Nemaline Myopathy, Patient Centered Research

Sonya Negley, BA | A Foundation for Building Strength
Engagement in Research Project

National Alopecia Areata Foundation Patient Support Conference

Dory Kranz, MA | National Alopecia Areata Foundation