Project Summary
Research Action for Health Network (REACHnet), previously known as The Louisiana Clinical Data Research Network (LaCDRN), is managed by the Louisiana Public Health Institute (LPHI) and includes five partnering organizations. The primary goal of REACHnet is to improve the efficiency of patient-centered comparative effectiveness research (CER) by establishing an innovative, health informatics-driven data collection, patient engagement, patient recruitment, and trial management infrastructure for a representative patient population. REACHnet’s primary research focus areas are diabetes, weight management, sickle cell disease, and rare cancers.
The achievement of REACHnet’s goals is supported by REACHnet's informatics, research, and engagement cores. The vision of REACHnet's informatics core is to implement a scalable, interoperable, and flexible data architecture, which is fueled by an open source technology stack allowing ingestion, analysis, and enrichment of many types of data. REACHnet's research core leverages the robust informatics infrastructure to increase the efficiency and scope of patient-centered CER through streamlined Institutional Review Board (IRB) oversight, collection and integration of patient-generated health data, and electronically facilitated clinical trial implementation. The goal of the engagement core is to design and implement an engagement strategy that includes proactive outreach, evidence-based education, and meaningful co-development of research initiatives with stakeholders through the REACHnet governance structure, broader patient and clinician engagement channels, the Health in Our Hands Patient Network, and the implementation of clinical integration strategies. The three REACHnet cores work together as a team of teams, interfacing with other REACHnet stakeholders to create a pragmatic trial infrastructure poised to advance patient-centered CER across the Gulf Coast.
REACHnet’s research infrastructure, including clinical data informatics to query longitudinal patient records of nearly 2 million active patients, research coordination through IRB alignment and standardized collection of patient reported outcomes, and patient and clinician engagement in the research process, positions REACHnet to advance pragmatic research and increase the capacity for patient-centered CER. Increasing the capacity for and efficiency of CER has the potential to produce actionable, translational research findings that will allow health systems to learn from best treatment practices to improve health outcomes and patient-centered care. Given these innovations and efficiencies, REACHnet is poised to have a deep impact across the Gulf Coast.
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