Central New York Citizen’s Aging Research and Action Network’s (CNY-CAN’s) vision is to enable citizens, patients, formal and informal caregivers, clinicians, researchers, and health and social service organizations to guide aging-related research, participate in research and project teams, be champions for patient-centered research, help translate research into practice, and help sustain CNY-CAN as a community resource. CNY-CAN’s focus is on developing clinical effectiveness research projects that enable older adults to age comfortably in their own homes for as long as they wish, even as health issues arise. Under Tier II, CNY-CAN will engage stakeholders in identifying one CER question to develop as a competitive research proposal out of the six CER ideas that emerged through stakeholder engagement during Tier I. These CER ideas compare two or more approaches to empowering older adults to make their own health decisions, increasing early detection of health and social support needs, improving communication between providers and older adults and their caregivers, improving frail elder access to primary care in the home, reducing stress among patients and informal caregivers, and improving care provided by formal caregivers.
Forging Our Community’s United Strength (F.O.C.U.S.) Greater Syracuse, the lead entity, is a unique citizen engagement organization formed in 1998 that serves as a neutral convener of citizens, organizations, and government entities that work together to promote inclusive, sustainable decision making on a range of civic issues. F.O.C.U.S.’s organizational partners are State University of New York (SUNY) Upstate Medical University Division of Geriatrics (research partner), Southwest Community Center (grassroots community partner), and HealtheConnections (health services and population health partner).
VIDEO (below): Focusing on Frailty
This Pipeline to Proposal award focuses on allowing older patients facing frailty to maintain their independence as long as possible.
VIDEO (below): Encompassing the Whole Patient
Sharon Brangman shares how she’s gaining a different perspective through her first patient-centered outcomes research project.
*All proposed projects, including requested budgets and project periods, are approved subject to a programmatic and budget review by PCORI staff and the negotiation of a formal award contract.