Public Input Process for the National Priorities for Research and Research Agenda

The Patient-Centered Outcomes Research Institute (PCORI) will provide a single 53-day public comment period prior to the adoption of its first National Priorities for Research and Research Agenda. The comment period begins on Monday, January 23, 2012, and concludes at 11:59 p.m. ET on Thursday, March 15, 2012.

Information on how to submit input is provided on the PCORI website at www.pcori.org/provide-input. PCORI encourages individuals to provide input through its website, but will also accept input by mail. Responses received through www.pcori.org will be displayed for public view on the website in real time.

PCORI will conduct additional forums in cities across the United States to obtain and incorporate more public input and feedback on the draft national priorities for research and research agenda. These forums will include focus groups, involving patients, caregivers and clinicians, and a national forum on Monday, February 27, 2012, in Washington, D.C. The forum will be webcast and individuals will be able to participate remotely through a dial-in teleconference.

PCORI will review all input received before adopting its first National Priorities for Research and Research Agenda. A report will be published on www.pcori.org that summarizes the input received with an explanation of how the input led to any changes in the draft priorities and agenda. The revised National Priorities for Research and Research Agenda will be adopted by PCORI’s Board of Governors during a special public meeting in April. The priorities and agenda will inform the development of PCORI’s first primary research funding announcements, which will be made in May.

PCORI is a learning organization. Once the initial priorities and agenda are adopted, PCORI will work closely and continuously with all stakeholders to refine the agenda and to identify specific areas and questions where PCORI’s research can have the greatest impact. This process will include analysis of PCORI’s Pilot Projects Grants Program and the applications in response to PCORI’s first primary research funding announcements. Any future revisions to the priorities and research agenda will include a formal public comment process and additional forums.

PCORI solicits and receives input from the public about its work as part of its commitment to transparency, credibility and access. PCORI encourages public input on all aspects of its work. You may provide feedback at any time by emailing info@pcori.org or by completing a general feedback form on PCORI’s website: www.pcori.org/provide-input

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