Since our establishment, PCORI has been committed to meaningful involvement by patients, caregivers, clinicians, and other healthcare stakeholders in all our activities, as well as throughout the research we fund. Bringing together all healthcare stakeholders—with patients at the center—to help set research priorities and evaluate applications is our formula for ensuring we fund and conduct the most relevant research possible.
We believe that including patients and other stakeholders in the research process, from topic selection through dissemination and implementation of results, will lead to trustworthy and usable information likely to be taken up in practice.
We have three engagement goals:
- Build a patient-centered outcomes research, or PCOR, community
- Engage the PCOR community in research
- Promote dissemination and implementation of PCOR research findings
Although staff throughout PCORI are committed to authentic involvement of patients and other stakeholders, our Engagement program focuses specifically on such engagement. The program reaches out to patients and other stakeholders with events and workshops, trainings, funding opportunities, and an Ambassador program, as well as helping stakeholders participate in research topic generation and selection, review of research funding applications, and dissemination of research findings. We also guide researchers on ways to include patients and other stakeholders in their projects.
Eugene Washington PCORI Engagement Awards
These awards are designed to help build a national community of patients, caregivers, clinicians, researchers, and other healthcare stakeholders who will advance patient-centered CER. This community’s involvement in the research process will increase the usefulness of the information we produce, while supporting the passion and efforts of patients and others who are eager to see more research focused on the their healthcare questions.
The awards provide support for projects that increase knowledge about consumers of healthcare and their use of and needs for PCOR, build capacity for engaging in PCOR, or develop channels for dissemination and implementation of PCOR findings. The program also funds PCOR/CER meetings and conferences.
Pipeline to Proposal Awards
The Pipeline to Proposal awards program provide seed money to individuals and groups who have healthcare research ideas and an interest in patient-centered CER. The awards will be used to build capacity and engage community around a healthcare research interest. These awards focus on building the community of patients, stakeholders, and researchers who can participate in patient-centered outcomes research.
The PCORI Challenge initiative is an opportunity for innovators to help patients, caregivers, clinicians, and others from across the healthcare community become actively engaged in all aspects of the clinical research process. In the first round of the challenge in 2013, two winners created innovative design concepts and prototypes to connect patients and researchers as partners. In 2014, the second round asked developers to create a polished, ready-to-publish app to will facilitate partnerships between patients, other stakeholders, and researchers.
PCORI in Practice Webinars provide an opportunity for the public to learn about promising practices of meaningful engagement in the research that we fund and how to get involved in our work.
During Regional Engagement Workshops, patients, researchers, and other healthcare stakeholders in a given region learn more about PCORI and build relationships with others interested in patient-centered clinical comparative effectiveness research, or CER.
Engagement Roundtables invite representatives with knowledge and experience in a specific healthcare topic area to guide development of our innovative, patient-centered research agenda. Roundtables, which are focused by stakeholder group or topic area, are often open to public participation via webinar or teleconference.
Finally, in our Ambassador Program, patients, organizations, and other stakeholders share PCORI’s vision and mission with their communities, encourage others to participate as full partners in research, and help prepare for the distribution and use of information generated from PCORI-funded projects.