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Patient-Centered Outcomes Research Institute
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PCORI

Patient-Centered Outcomes Research Institute

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    About Us

    • Our Programs
    • Governance
    • Financials and Reports
    • Procurement Opportunities
    • Our Staff
    • Our Vision & Mission
    • Contact Us

    Fact Sheets: Learn More About PCORI

    Download fact sheets about out work, the research we fund, and our programs and initiatives.

    Find It Fast

    Browse through an alphabetical list of frequently accessed and searched terms for information and resources.

    Subscribe to PCORI Email Alerts

    Sign up for weekly emails to stay current on the latest results of our funded projects, and more.

  • Research & Results
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    Research & Results

    • Explore Our Portfolio
    • Research Fundamentals
    • Research Results Highlights
    • Putting Evidence to Work
    • Peer Review
    • Evidence Synthesis
    • About Our Research

    Evidence Updates from PCORI-Funded Studies

    These updates capture highlights of findings from systematic reviews and our funded research studies.

    Journal Articles About Our Funded Research

    Browse through a collection of journal publications that provides insights into PCORI-funded work.

    Explore Our Portfolio of Funded Projects

    Find out about projects based on the health conditions they focus on, the state they are in, and if they have results.

  • Topics
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    Topics

    • Addressing Disparities
    • Arthritis
    • Asthma
    • Cancer
    • Cardiovascular Disease
    • Children's Health
    • Community Health Workers
    • COVID-19
    • Dementia and Cognitive Impairment
    • Diabetes
    • Kidney Disease
    • Medicaid
    • Men's Health
    • Mental and Behavioral Health
    • Minority Mental Health
    • Multiple Chronic Conditions
    • Multiple Sclerosis
    • Obesity
    • Older Adults' Health
    • Pain Care and Opioids
    • Rare Diseases
    • Rural Health
    • Shared Decision Making
    • Telehealth
    • Transitional Care
    • Veterans Health
    • Women's Health

    Featured Topic: Women's Health

    Learn more about the projects we support on conditions that specifically or more often affect women.

  • Engagement
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    Engagement

    • The Value of Engagement
    • Engagement in Health Research Literature Explorer
    • Influencing the Culture of Research
    • Engagement Awards
    • Engagement Resources
    • Engage with Us

    Engagement Tools and Resources for Research

    This searchable peer-to-peer repository includes resources that can inform future work in patient-centered outcomes research.

    Explore Engagement in Health Literature

    This tool enables searching for published articles about engagement in health research.

    Research Fundamentals: A New On-Demand Training

    It enables those new to health research or patient-centered research to learn more about the research process.

  • Funding Opportunities
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    Funding Opportunities

    • What & Who We Fund
    • What You Need to Know to Apply
    • Applicant Training
    • Merit Review
    • Awardee Resources
    • Help Center

    PCORI Funding Opportunities

    View and learn about the newly opened funding announcements and the upcoming PFAs in 2021.

    Tips for Submitting a Responsive LOI

    Find out what PCORI looks for in a letter of intent (LOI) along with other helpful tips.

    PCORI Awardee Resources

    These resources can help awardees in complying with the terms and conditions of their contract.

  • Meetings & Events
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    Meetings & Events

    • Upcoming
    • Past Events

    January 2021 Board of Governors Meeting

    The Board approved funding for a new research study relating to kidney health and a new funding allocation for PCORnet. Learn more

    Confronting COVID-19: A Webinar Series

    Learn more about the series and access recordings and summary reports of all six sessions.

    2020 PCORI Annual Meeting

    Watch recordings of all sessions, and view titles and descriptions of the posters presented at the virtual meeting.

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  • About Us
  • Our Programs
  • Engagement
  • Public and Patient Engagement
  • PCORI's Stakeholders

PCORI's Stakeholders

A broad range of communities have a stake in generating useful and relevant healthcare research evidence. The term "research partner", includes individuals who have experience living with, caring for, advocating for, and/or treating those with a condition. These individuals are included on research teams to share their knowledge and perspectives to ultimately enhance the relevance and use of the research. PCORI champions "patient partners" who are representative of the population of interest in a particular study, as well as their family members, caregivers, and the organizations that represent them. Other stakeholder partners include members of constituencies based on professional experience including clinicians, community members, healthcare purchasers, payers, industry, hospitals and other health systems, policy makers, training institutions, and researchers.

We realize that individuals may be members of several communities. For example, a nurse who practices direct patient care in a residency program attached to a hospital could present the viewpoint of clinicians, hospital and health systems, or training institutions, or even a patient. For most activities, such as PCORI Advisory Panels or Merit Review, we ask participants to identify the viewpoint they are primarily representing. However, we find it valuable to recognize all the perspectives that a participant has experienced across the healthcare continuum.

How PCORI Defines Stakeholders

Stakeholder Definition Includes Examples

Patients

Persons with current or past experience of illness or injury, family members or other unpaid caregivers of patients, or members of advocacy organizations that represent patients or caregivers

A man who has grown up with and still manages Type I diabetes, a young woman whose leg was amputated after a traumatic injury, a man with bipolar disorder; a woman providing hospice care in her home for her husband with advanced ALS, a man who drives his sister to her chemotherapy appointments and helps her complete household chores, siblings who take turns going to an assisted-living facility to visit their parents with dementia and coordinate their medical needs and manage their finances; the patient council leader for a national heart disease advocacy organization, the patient engagement specialist for a state-based newborn health coalition, the executive director of a stroke patient advocacy foundation who also has personal experience with strokes

Clinicians

Providers of health care in a clinical setting, including physicians, nurses, physician assistants, rehabilitative professionals, pharmacists, mental healthcare providers, complementary and alternative healthcare providers, and professional societies serving clinicians

Family physician in direct patient care in a small group practice, hospital floor nurse, psychologist in private practice, American Medical Association, and American Nurses Association

Researchers

Those who conduct clinical research, including investigators or funders of research and organizations or associations representing the research community

Research administrator at a private university, nurse researcher at a public nursing school, and program officer at a nonprofit research foundation

Purchasers

Those who purchase health benefits for employees and their dependents, including individual businesses as well as local, state, regional, and national business groups, coalitions that represent businesses, and health coalitions

Individuals or organizations such as owner of a family-run business, staff of a state chamber of commerce, or the health benefits manager of a large, ERISA-covered employer

Payers

Those who function as financial intermediaries in the health system, including private insurers and public insurers, and organizations representing insurers, such as America’s Health Insurance Plans

Chief medical officer of health insurance cooperative, claims adjuster at a large insurer, and policy analyst at an insurance trade association, the insurers BlueCross BlueShield, Medicaid, and Medicare

Industry

Companies that design, invest in, or manufacture diagnostics, devices, pharmaceuticals, electronic records systems, and mobile apps, and organizations representing the life sciences industry, such as the Advanced Medical Technologies Association

Chief medical officer of a device manufacturer, government relations staff at a diagnostics trade association, and research director for a pharmaceutical company

Hospitals and Health Systems

Organizations where care is delivered, including public and private hospitals and health systems, urgent care centers, retail health clinics, and community health centers, and organizations representing these facilities

Clinic administrator of a multispecialty physician practice, executive of a public hospital, research director at an integrated health system, and American Hospital Association or America's Essential Hospitals

Policy Makers

Those who help craft public policy at any level of government, including federal, state, and local government officials; federal, state, and local units of government; and organizations that represent policy makers

State Medicaid director, representative of the Office of the National Coordinator for Health IT, and policy analyst at the National Association of County and City Health Officials, and National Conference of State Legislatures and National Association of Counties

Training Institutions

Those that deliver health professional education include public and private universities and colleges, individuals affiliated with the delivery or administration of health professional education, and trade or professional associations representing these institutions, organizations, and individuals

Dean of a nursing school, director of a residency program, and manager of a provider of continuing medical education


Posted: September 10, 2014; Updated: October 9, 2018

About Us

  • Our Programs
  • Governance
  • Financials and Reports
  • Procurement Opportunities
  • Our Staff
  • Our Vision & Mission
  • Contact Us

Research & Results

  • Explore Our Portfolio
  • Research Fundamentals
  • Research Results Highlights
  • Putting Evidence to Work
  • Peer Review
  • Evidence Synthesis
  • About Our Research

Engagement

  • The Value of Engagement
  • Engagement in Health Research Literature Explorer
  • Influencing the Culture of Research
  • Engagement Awards
  • Engagement Resources
  • Engage with Us

Funding Opportunities

  • What & Who We Fund
  • What You Need to Know to Apply
  • Applicant Training
  • Merit Review
  • Awardee Resources
  • Help Center

Meetings & Events

January 21
Cycle 1 2021 Broad PFA Applicant Town Hall
February 2
PCORI 2021 and Beyond: Opportunities for Funding and Involvement in Patient-Centered Research
February 9
Board of Governors Meeting: February 9, 2021

PCORI

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Patient-Centered Outcomes
Research Institute

1828 L Street, NW, Suite 900
Washington, DC 20036
Phone: (202) 827-7700 | Fax: (202) 355-9558
[email protected]

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