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Community Activist's Work Influenced by Service on PCORI Advisory Panel
Blog
My time on the PCORI Patient Engagement Advisory Panel (PEAP), as both a member and chair from 2017 to 2020, has had a tremendous impact on my thinking about patient…
Study Makes Strides in Improving Parental Mental Health
Blog
Every time a parent leaves our neonatal intensive care unit (NICU) to take their child home, we are asking them to do superhuman things. At Children’s National Hospital, the tasks…
Advisory Panel Experience Informs Perspectives on Health Disparities
Blog
Providing equitable care is my passion, but it’s a challenge when patients span two different worlds in the same state. I care for patients as a pediatric urologist at Seattle…
Sharing Messages of Engagement in Health from Montana's Crow Indian Nation
Blog
It is devastating for anyone to lose somebody, especially when that person is a child. When my young, twin daughter received the diagnosis of stage IV neuroblastoma, a cancer of…
In the Navajo Nation, a Focus on Health Data
Blog
Native Americans have the highest rate of diabetes of all US racial and ethnic groups. Around 16 percent of American Indian and Alaska Native adults have been diagnosed with that…
How Patient-Centered Outcomes Research Helps Families With Rare Diseases
Blog
Despite the name, "rare diseases" affect 30 million Americans. And their impact is severe—some of these illnesses have no effective treatment, and many are debilitating and life threatening. Yet each…