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Through one-on-one conversations, small group meetings and large stakeholder convenings with people with IDD and their caregivers as well as researchers, clinicians and advocacy organizations, PCORI continues to understand priorities of people with IDD and those who support and care for them. In a recent discussion during the 2023 PCORI Annual Meeting, panelists discussed the spectrum of PCORI’s funded research aimed at improving mental health in individuals with IDD and the vital role of patient partners in this work.

Diabetes is a chronic condition that, while treatable and manageable with proper care, can have serious negative effects on quality and length of life if left unaddressed. More than half…

The Eugene Washington PCORI Engagement Award Program is now accepting applications for the October 2023 Cycle PCORI Funding Announcements (PFAs). The Engagement Award Program supports projects that encourage active, meaningful…

Sixty-five percent of maternal deaths in the United States occur postpartum, and the majority occur a week or more after delivery. And yet, there is comparatively little attention or follow-up…

The eighth PCORI Annual Meeting last month highlighted so much of what makes our community special: a broad, diverse range of engaged stakeholders; inspirational expert speakers; compelling results from patient-centered…

About this Blog Series Kristin Lee Berg, PhD, LCSW, was never a rebellious teenager, but she did have to navigate total vision loss in one eye and partial blindness in…

Editor's Note (February 27, 2023) These eight Topic Themes join four that are ongoing—preventing maternal morbidity and mortality, improving outcomes for people with intellectual or developmental disabilities, addressing COVID-19, and…

About this Blog Series Growing up in California, Mei Kwong, JD, dreamed of becoming a singer or an actress, but never planned on becoming an attorney, much less a nationally…

About this Blog Series On March 10, 2020, the Department of Public Health confirmed the first case of COVID-19 in Philadelphia. Eleven days later, COVID Watch , a patient outreach…

PCORI’s third funding cycle of the year opens September 7, seeking projects that answer questions about the most effective treatments for a variety of topics, study the best ways to…

The COVID-19 pandemic triggered many uncertainties and concerns for pregnant people, who were faced with navigating frequent prenatal and postpartum healthcare visits under risk of COVID-19 exposure. The pandemic has…

Our efforts to engage patients and stakeholders across the healthcare community, and focus on outcomes of interest to patients and those who care for them, are how we conduct Research…

On May 3, PCORI opened its second funding cycle of the year and started accepting Letters of Intent for several PCORI Funding Announcements (PFAs), which include calls for: Research studies…

My time on the PCORI Patient Engagement Advisory Panel (PEAP), as both a member and chair from 2017 to 2020, has had a tremendous impact on my thinking about patient…

Since 2014, the Eugene Washington PCORI Engagement Award program has awarded more than $130 million to fund more than 637 projects that build communities ready to engage in patient-centered outcomes…

If you tuned in to the PCORI Annual Meeting last November, you may have heard PCORI Executive Director Nakela L. Cook, MD, MPH, discuss our new Rapid Review series…

PCORI is always looking for ways to respond to stakeholder feedback and enhance our processes to achieve our mission more effectively. I am pleased to report on some recent and…

Delivering on its commitment to develop an extensive pipeline of funding opportunities made earlier this year, PCORI opens its third funding cycle on September 7. The funding cycle includes nine…

As the nation’s primary funder of patient-centered comparative clinical effectiveness research, PCORI examines the important questions that patients face and helps create an informed healthcare system. Congressional reauthorization in 2019…

An array of PCORI Funding Announcements (PFAs) open for Letters of Intent (LOI) on Tuesday, May 4, including three targeted announcements seeking projects on areas of acute interest. Two of…

The Eugene Washington PCORI Engagement Awards program today introduces two special funding opportunities to build capacity to support patient-centered outcomes research (PCOR). These PFAs call for proposals related to COVID-19…

As 2021 begins, PCORI launches this new year with renewed energy and ambitious goals, inspiring our leadership in patient-centered outcomes research amid challenges that are transforming the nation’s healthcare and…

ABC News’ flagship morning program Good Morning America recently featured an online story on care for people with Down syndrome that highlighted a PCORI-funded project. The story about 28-year-old Cristina…

Telehealth—the use of digital information and communication technologies, such as computers and mobile devices, to access health care services remotely and manage health care—has grown in promise as technology has…

As Americans’ use of cell phones and the internet have increased rapidly, clinicians and researchers have realized that telehealth may help people better manage their health. Telehealth, which involves clinicians…