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Patient Peer Review, PCORI Style

The Patient-Centered Outcomes Research Institute (PCORI) is a unique organization that, as its name implies, engages patients in all its work. One aspect of that work is peer review, which…

How I Cured My Rare Disease

Editor's Note: The views expressed here are those of the author and not necessarily those of PCORI. There are an estimated 25 to 30 million rare disease sufferers in the…

The Importance of the Patient Voice

I was a shy child, but somewhere along the way I found my voice. Perhaps it was because of the countless times my parents told me to speak up for…

Drawing on Mental Health "Experts-by-Experience"

An estimated 43.6 million American adults—nearly one in five—have mental illness. Anxiety and mood disorders, including depression, are the most common forms. While these conditions are usually treatable, clinicians often…

In the Navajo Nation, a Focus on Health Data

Native Americans have the highest rate of diabetes of all US racial and ethnic groups. Around 16 percent of American Indian and Alaska Native adults have been diagnosed with that…

What's Happening at PCORI?

The Patient-Centered Outcomes Research Institute sends weekly emails about opportunities to apply for funding, newly funded research studies and engagement projects, results of our funded research, webinars, and other new information posted on our site.

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