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Displaying 1 - 25 of 46 results

The Value of Patient Advisory Boards

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Patients have provided crucial feedback from the beginning of the PCORI-funded project “ S ocio-Legal Services for U nderserved P opulations through P atient Navigation to O ptimize R esources…

Big Data versus a Rare Disease

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Shannon is my third child. She turned 16 in August. She’s beautiful and has the attitude of a 16-year-old. However, although she understands most of what we say, she can’t…

Changing the Course of Research

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Looking ahead to PCORI’s second Annual Meeting, November 17–19, we asked several of the scheduled presenters to describe their journey into patient-centered outcomes research and discuss what the meeting’s theme…

When a Clinician Becomes a Patient

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I was 25 when I was diagnosed with multiple sclerosis (MS), five years ago. I was young, an athlete, and an intensive care unit nurse. I had recently begun a…

Faster Ways to Get Actionable Evidence to Stakeholders

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When patients, clinicians, or other healthcare stakeholders raise a question that doesn’t already have an evidence-based answer, sometimes the dilemma can be best addressed with a new research study. But…

PCORI's Latest Milestones

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It’s sometimes hard to believe that it’s been just six years since PCORI’s Board of Governors first met and set us on our path to being the nation’s leading funder…

PCORI Marks National Health IT Week

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National Health IT Week, September 26–30, 2016, is a time to recognize the increasing value of information technology (IT) in health care and clinical research. Research that PCORI funds uses…

Patient-Centered Approaches to Sickle Cell Disease

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September is Sickle Cell Awareness Month, an opportunity for an update on PCORI-funded projects that focus on the nation’s most common genetic blood disorder. We also look forward to adding…

Taking on Childhood Obesity

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Nearly one-fifth of American children have obesity, increasing their risk of many associated health problems. These include conditions historically considered adult problems: heart disease, type 2 diabetes, high cholesterol, high…

Engaging Clinicians in Patient-Centered Research

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Doing patient-centered research involves more people than simply patients and researchers. Many studies include clinical staff: physicians, nurses, physician assistants, administrators, and others. They can make research protocols relevant to…

A Silver Medal for Patient of PCORI Awardee

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People with the gastrointestinal disorder Crohn’s disease often worry about leading a normal life . Kathleen Baker has gone far beyond that, all the way to the Olympics, where she…

Alzheimer's Network Puts Caregivers at Center

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Alzheimer’s disease and other dementias are a well-known burden in the United States and around the world. More than 5 million Americans have Alzheimer’s, and one of every three Americans…

Drawing on Mental Health "Experts-by-Experience"

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An estimated 43.6 million American adults—nearly one in five—have mental illness. Anxiety and mood disorders, including depression, are the most common forms. While these conditions are usually treatable, clinicians often…

Working to Improve Cancer Care for Patients

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Cancer, for so many, changes lives in a devastating way. Over 20 years ago, my sister lost her battle with cancer, leaving her family and children behind. Through mourning her…

How Cancer Survivors Make a Difference at PCORI

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In typical cancer studies, patients who wish to lend a hand are limited to being research participants. But at PCORI, we pride ourselves on research done differently. Patients are partners…

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