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The Value of Patient Advisory Boards
Blog
Patients have provided crucial feedback from the beginning of the PCORI-funded project “ S ocio-Legal Services for U nderserved P opulations through P atient Navigation to O ptimize R esources…
PCORI Joins Federal Agencies in Call for Collaboration in Big-Data Clinical Research
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PCORI is pleased to join a consortium of top federal and other biomedical research funders in a call, published in the New England Journal of Medicine , for greater collaboration…
Addressing Disparities in Health Outcomes of People with Asthma
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Around 24 million Americans have asthma, a chronic lung disease that inflames and narrows the airways. People with asthma go through periods of wheezing, chest tightness, shortness of breath, and…
Annual Meeting Starts Tomorrow: How PCORI Is Changing the Conversation about Health Research
Blog
We’re just one day away from PCORI’s second Annual Meeting. I know that all of those who helped to put together this gathering look forward to hosting some 1,200 members…
Big Data versus a Rare Disease
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Shannon is my third child. She turned 16 in August. She’s beautiful and has the attitude of a 16-year-old. However, although she understands most of what we say, she can’t…
Changing the Course of Research
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Looking ahead to PCORI’s second Annual Meeting, November 17–19, we asked several of the scheduled presenters to describe their journey into patient-centered outcomes research and discuss what the meeting’s theme…
When a Clinician Becomes a Patient
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I was 25 when I was diagnosed with multiple sclerosis (MS), five years ago. I was young, an athlete, and an intensive care unit nurse. I had recently begun a…
Faster Ways to Get Actionable Evidence to Stakeholders
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When patients, clinicians, or other healthcare stakeholders raise a question that doesn’t already have an evidence-based answer, sometimes the dilemma can be best addressed with a new research study. But…
Open for Comment: PCORI's Draft Policy on Data Access and Data Sharing
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We at PCORI are committed to disseminating the results of our funded research so that they may be widely taken up in practice. This availability of our findings to researchers…
PCORI's Latest Milestones
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It’s sometimes hard to believe that it’s been just six years since PCORI’s Board of Governors first met and set us on our path to being the nation’s leading funder…
Helping Survivors of Breast Cancer Watch Out for Recurrences
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There are more than 3 million women with a history of breast cancer in the United States, according to the National Cancer Institute. Around 90 percent of women diagnosed with…
PCORI Marks National Health IT Week
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National Health IT Week, September 26–30, 2016, is a time to recognize the increasing value of information technology (IT) in health care and clinical research. Research that PCORI funds uses…
Patient-Centered Approaches to Sickle Cell Disease
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September is Sickle Cell Awareness Month, an opportunity for an update on PCORI-funded projects that focus on the nation’s most common genetic blood disorder. We also look forward to adding…
Taking on Childhood Obesity
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Nearly one-fifth of American children have obesity, increasing their risk of many associated health problems. These include conditions historically considered adult problems: heart disease, type 2 diabetes, high cholesterol, high…
A Call for Research Questions: Help Us Identify Opportunities to Improve Care for Cardiovascular Diseases
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Building on our hallmark of engaging healthcare stakeholders in all phases of research, PCORI is excited to join the American Heart Association (AHA) in announcing a crowdsourcing challenge for clinicians…
Engaging Clinicians in Patient-Centered Research
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Doing patient-centered research involves more people than simply patients and researchers. Many studies include clinical staff: physicians, nurses, physician assistants, administrators, and others. They can make research protocols relevant to…
A Silver Medal for Patient of PCORI Awardee
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People with the gastrointestinal disorder Crohn’s disease often worry about leading a normal life . Kathleen Baker has gone far beyond that, all the way to the Olympics, where she…
Important Changes to Our Methods Program Funding Announcement
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Supporting methodological research to improve the design and conduct of patient-centered outcomes research (PCOR) is a priority for PCORI and outlined in our authorizing law . This commitment reflects our…
Multiple Sclerosis Research Network Builds on Patient Input
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Multiple sclerosis (MS) is a widespread, disabling neurological condition. In fact, it’s the most common disabling condition among adults between 20 and 40 years old. The World Health Organization estimates…
Caregivers Can Make Critical Contributions to Alzheimer's Research
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Family caregivers play a key role in supporting patients with a wide variety of disorders, but they are especially important in taking care of patients with Alzheimer’s disease and other…
Alzheimer's Network Puts Caregivers at Center
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Alzheimer’s disease and other dementias are a well-known burden in the United States and around the world. More than 5 million Americans have Alzheimer’s, and one of every three Americans…
Drawing on Mental Health "Experts-by-Experience"
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An estimated 43.6 million American adults—nearly one in five—have mental illness. Anxiety and mood disorders, including depression, are the most common forms. While these conditions are usually treatable, clinicians often…
Working to Improve Cancer Care for Patients
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Cancer, for so many, changes lives in a devastating way. Over 20 years ago, my sister lost her battle with cancer, leaving her family and children behind. Through mourning her…
How Cancer Survivors Make a Difference at PCORI
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In typical cancer studies, patients who wish to lend a hand are limited to being research participants. But at PCORI, we pride ourselves on research done differently. Patients are partners…
New Pipeline to Proposal Funding Opportunity Available to Research Partnerships
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Today, PCORI is launching a new funding announcement under the Pipeline to Proposal (P2P) funding initiative. Unlike previous P2P opportunities, the Independent Tier III funding mechanism targets already-established partnerships of…