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Engagement Award October 2023 Cycle Funding Announcements Open
Blog
The Eugene Washington PCORI Engagement Award Program is now accepting applications for the October 2023 Cycle PCORI Funding Announcements (PFAs). The Engagement Award Program supports projects that encourage active, meaningful…
Topic Themes: Informing Future PCORI Funding Opportunities
Blog
Editor's Note (February 27, 2023) These eight Topic Themes join four that are ongoing—preventing maternal morbidity and mortality, improving outcomes for people with intellectual or developmental disabilities, addressing COVID-19, and…
PCORI Annual Meeting Keynote Speaker -- Co-Founder and President of Sick Cells -- Continues to Honor her Late Brother's Vision
Blog
Every day of the year, and not just during National Sickle Cell Awareness Month, Ashley Valentine, co-founder, and president of Sick Cells , celebrates the legacy of her late brother…
Spotlight on National Sickle Cell Disease Awareness Month
Blog
More than 100,000 people in the United States have sickle cell disease —a group of inherited red blood cell disorders that affect blood flow and the body’s use of oxygen…
PCORI-Funded Project Featured on Good Morning America Website
Blog
ABC News’ flagship morning program Good Morning America recently featured an online story on care for people with Down syndrome that highlighted a PCORI-funded project. The story about 28-year-old Cristina…
PCORI Researchers Are Answering Rapidly Emerging Questions about Telehealth
Blog
Telehealth—the use of digital information and communication technologies, such as computers and mobile devices, to access health care services remotely and manage health care—has grown in promise as technology has…
COVID-19, Other Research Funding Opportunities Open for Proposals
Blog
As COVID-19 continues to present unique healthcare challenges to our nation, PCORI in turn continues to consider how we can best contribute to ongoing efforts to combat it hand in…
PCORI's Continued Commitment to Researching Rare Diseases
Blog
It’s been an eventful year for Scott Berns, MD, MPH. In 2019, Berns and his wife, Leslie Gordon, MD, PhD, were keynote speakers at the PCORI Annual Meeting. Then, in…
How I Cured My Rare Disease
Blog
Editor's Note: The views expressed here are those of the author and not necessarily those of PCORI. There are an estimated 25 to 30 million rare disease sufferers in the…
How Patient-Centered Outcomes Research Helps Families With Rare Diseases
Blog
Despite the name, "rare diseases" affect 30 million Americans. And their impact is severe—some of these illnesses have no effective treatment, and many are debilitating and life threatening. Yet each…