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Improving the Patient Experience by Working Together
Blog
The patient-focused view of health care is expanding, as clinicians and researchers alike recognize the value of engaging patients and their families in decisions about treatments to consider or topics…
Twitter Chats Engage Patients and Other Stakeholders
Blog
Patients and other healthcare stakeholders guide the work we do at PCORI, from suggesting and helping prioritize the research questions we consider for funding opportunities, to evaluating the studies we…
Keeping Patients at the Center of All Stages of Clinical Research
Blog
Traditionally, scientists alone have developed studies to provide information for patients and clinicians to use in making healthcare decisions. But at PCORI—and increasingly, elsewhere— there’s a growing recognition that this…
Filling the Research Pipeline
Blog
Researchers aren’t the only ones who have ideas that might form the basis for a research study. When patients, their families, clinicians, or others have questions that they can’t answer…
Patients and Researchers Join Forces to Fight Inflammatory Bowel Disease
Blog
I remember first learning about the immune system in elementary school. “Think of it like a very powerful army,” my teacher told me. “Different soldiers have different jobs, but everyone…
Patients Guide Research to Combat Diabetes
Blog
November is Diabetes Awareness month, a time when diabetes advocacy groups and research organizations call attention to the chronic and potentially debilitating condition. I am among the nearly 10 percent…
PCORI's Inaugural Annual Meeting - A Milestone in "Research Done Differently"
Blog
PCORI's first Annual Meeting brought together more than 1,100 researchers, patients, caregivers, clinicians and others for three days of sessions that highlighted efforts to build a patient-centered comparative clinical effectiveness…
New PCORI Guidelines for Research on Rare Diseases
Blog
Over the past year, we have more than doubled the number of rare disease studies in our research portfolio, and those 21 awards address a diverse set of conditions. PCORI’s…
Transforming Research by Partnering With Patients - A View from the Field
Blog
To mark our fifth anniversary, we asked patients, caregivers, clinicians, and researchers to describe their experiences with engagement of healthcare stakeholders in research and share their thoughts about building a…
What's New in PCORI's Latest Funding Announcements?
Blog
PCORI has completed eight cycles of research funding since our inception. We very much appreciate the time and resources that our applicants commit when proposing projects to us and that…
How Engaging Patients as Equal Partners Can Improve the Quality of Research
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To mark our fifth anniversary, we asked patients, caregivers, clinicians, and researchers to describe their experiences with engagement of healthcare stakeholders in research and share their thoughts about building a…
Realizing the Benefits of Patient and Family Engagement
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To mark our fifth anniversary, we asked patients, caregivers, clinicians, and researchers to describe their experiences with engagement of healthcare stakeholders in research and share their thoughts about building a…
Developing Evidence to Help Breast Cancer Patients Make Informed Decisions
Blog
October is Breast Cancer Awareness Month. During this annual campaign, organizations strive to increase awareness of the disease, encourage early detection, and increase support for research into its cause, prevention…
PCORI at Age Five - A Record of Achievement, with Plenty Left to Do
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It’s hard to imagine that just five years ago, PCORI was little more than an ambitious vision to fund research on which healthcare options work best, under which circumstances, based…
PCORI-Funded Research Tackles the Healthcare Questions of Older Adults
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Older adults make up an increasingly large proportion of the population in the United States. This is due in part to advances in care leading to longer life spans and…
Drug Prescription Helps Stroke Survivors Live at Home Longer
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One of our core beliefs at PCORI is that if studies look at outcomes important to patients and those who care for them, the results will help those stakeholders make…
Spotlight on a Patient-Powered Research Network
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Author(s): PCORI Staff In its September newsletter, the patient advocacy group Facing Our Risk of Cancer Empowered ( FORCE ) highlights its participation in ABOUT (American BRCA* Outcomes and Utilization…
A New Era in Alzheimer's Research Has Arrived, and There is a Place at the Table for Patients and Family Caregivers
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Last month, there were tears of joy at my house when I learned of the Patient-Centered Outcome Research Institute’s (PCORI’s) award for a Patient-Powered Research Network (PPRN) focused on Alzheimer’s…
How Researchers Are Using Electronic Health Records to Improve Care and Outcomes
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I’m pleased to tell you about a new audio report by iHealthBeat on the promise and challenges of using electronic health records (EHRs) for research. I was happy to participate…
Leveraging PCORnet and Health Data to Make Gains against Obesity
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Obesity is at epidemic levels in the United States. About 30 percent of American adults have obesity, with 5 percent having severe obesity. Among adolescents aged 12 to 19, 20…
Sowing Seeds of Trust in Patient-Centered Research
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Trust is central to the relationship between patients and their clinicians. It’s also essential to the relationship between patients and researchers if patients are to fully engage in clinical research…
Evaluating the PCORI Recipe: Metrics, Methods, and Sources
Blog
As a learning organization, PCORI continuously strives to evaluate all aspects of our work to improve its reliability, efficiency, and value. The PCORI Evaluation Framework is an important part of…
How PCORI Chooses Research Questions to Fund
Blog
PCORI has a broad charge: to fund research that improves the quality and relevance of evidence available to all healthcare stakeholders to help them make informed decisions. But such a…
PCORnet: Progress, Challenges, and Opportunities Ahead
Blog
When PCORI first proposed developing a national clinical research collaborative and community that would harness the power of partnerships and health data to improve patient outcomes, we knew we’d set…
A Framework for Financial Compensation for Patient Partners in Research
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Patients, caregivers, and their advocates provide invaluable contributions to activities both here at PCORI and in the studies we fund. In fact, we require that patients and other healthcare stakeholders…