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Patient Peer Review, PCORI Style

Blog
The Patient-Centered Outcomes Research Institute (PCORI) is a unique organization that, as its name implies, engages patients in all its work. One aspect of that work is peer review, which…

How I Cured My Rare Disease

Blog
Editor's Note: The views expressed here are those of the author and not necessarily those of PCORI. There are an estimated 25 to 30 million rare disease sufferers in the…

The Importance of the Patient Voice

Blog
I was a shy child, but somewhere along the way I found my voice. Perhaps it was because of the countless times my parents told me to speak up for…

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