This document provides a set of guiding engagement principles for placing diversity, equity, and inclusion at the center of health research partnerships. Developed by PCORI’s Advisory Panel on Patient Engagement, the four principles—Inclusion, Equitable Partnerships, Trust/Trustworthiness, and Accountability/Actionability—are offered to ensure that diversity, equity, and inclusion are an explicit goal of partnerships from the start.
The principles are intended for any person or organization involved in the research community, including leaders and members of multi-stakeholder research teams, leaders and staff of health research organizations, health systems, patient and other stakeholder organizations, and training institutions. The document includes self-assessment questions and practical suggestions for teams to incorporate into activities.
This report was created by the Advisory Panel on Patient Engagement of the Patient-Centered Outcomes Research Institute® (PCORI®). The content included in these Principles do not necessarily represent the views of the PCORI, its Board of Governors or Methodology Committee. PCORI does not make any guarantees with respect to the accuracy or reliability of the information in this content.
Visit PCORI’s Advisory Panel on Patient Engagement for more information about its work.
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