Past Opportunities to Provide Input
- Systematic Review of Audio Care for the Management of Mental Health and Chronic Conditions (2023) -- Draft Key Questions
- Proposed New Methodology Standards for Usual Care as a Comparator (2023)
- Stakeholder Views on Components of 'Patient-Centered Value' in Health and Health Care (2023)
- PCORI's Proposed Research Agenda (2021-2022)
- Proposed National Priorities for Health (2021)
- Proposed Principles for the Consideration of the Full Range of Outcomes Data in PCORI-Funded Research (2020)
- Proposed New PCORI Methodology Standards (2018)
- Data Access and Data Sharing Policy: Public Comment (2017)
- Proposed New PCORI Methodology Standards (2017)
Comment on the Proposed New and Revised PCORI Methodology Standards (2016)
- 1. Standards for Formulating Research Questions
- 10: Standards for Studies of Diagnostic Tests
- 12. Standards on Research Designs Using Clusters
- 13: General Comments on the Proposed Revisions to the PCORI Methodology Standards
- 2: Standards Associated with Patient-Centeredness
- 3: Standards for Data Integrity and Rigorous Analysis
- 4: Standards for Preventing and Handling Missing Data
- 5: Standards for Heterogeneity of Treatment Effects
- 6: Standards for Data Registries
- 7: Standards for Data Networks as Research-Facilitating Structures
- 8. Standards for Causal Inference Methods
- 9. Standards for Adaptive Trial Designs
- Peer-Review Process Comments (2014)
- Draft Methodology Report Public Comment Period (2012)
From Jan. 3 through March 3, 2023, PCORI requested input from the community of our stakeholders and the public related to the findings gleaned from a new report, Stakeholder Views on Components of "Patient-Centered Value" in Health and Health Care. Read the draft report below.
The 2019 law reauthorizing PCORI’s funding clarifies that PCORI-funded studies should capture, as appropriate, "the full range of clinical and patient-centered outcomes," specifically adding "the potential burdens and economic impacts" of healthcare services to the patient-centered outcomes and clinical effectiveness measures that have been the hallmarks of the research we have funded to date.
PCORI initiated a multi-step process better understand stakeholder views on how collecting burden and economic impact data intersects with considerations of “value” in health and health care and how the communities PCORI serves define “patient-centered value.” This work involved a landscape review, convenings of stakeholders comprising (i) one-to-one interviews, (ii) small-group workshops with stakeholders, and finally (iii) a large, multi-stakeholder convening.
This work has resulted in a draft inventory of attributes of patient-centered value, presented here for review by and input from the public and patients.
About this Request for Public Input
As part of PCORI’s commitment to transparency, all input will be posted to PCORI’s web site. This request for input should not be construed as an intent, commitment, or promise to acquire services or solutions offered. PCORI will use information submitted by respondents at its own discretion and will not necessarily provide comments to respondent submissions. PCORI will not reimburse public input respondents for any expenses associated with responding to this opportunity, though PCORI sincerely appreciates respondents’ efforts and input.
Posted: January 2023; Updated: July 2023
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