Patient-Centered Economic Outcomes Landscape (2023-2024): Request for Public Input

PCORI is seeking input from the community related to a draft Patient-Centered Economic Outcomes Landscape for Considering the Full Range of Outcomes in PCORI-funded Research.

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PCORI-funded studies should capture, as appropriate, the full range of clinical and patient-centered outcomes. This includes costs and other economic burdens—these are the potential burdens and economic impacts of the utilization of medical treatments, items, and services on different stakeholders and decision-makers.

PCORI has produced a draft Landscape of Patient-Centered Economic Outcomes that aims to lay out, in one place, appropriate and relevant outcomes, that capture costs and other economic burdens from a patient-centered, but multi-stakeholder, perspective.

The landscape is intended to serve as a reference for PCORI applicants to use when considering their research questions, patient populations, study contexts and settings, and what patient-centered economic outcomes might be appropriate and relevant.

The landscape does not present or prescribe what outcomes, measurement techniques, or analytic methods researchers must include. PCORI intends it to be a reference and not a blueprint. PCORI invites input from patients, families, caregivers, and all of our stakeholders, the broader healthcare community, and the public.

The deadline for input is Jan. 15, 2024, at 5 pm (ET). If you have questions or are having trouble with your submission, please contact [email protected].

Submit Your Input

We invite input on the draft Patient-Centered Economic Outcomes Landscape for Considering the Full Range of Outcomes in PCORI-funded Research. All comments are welcome, but we are specifically interested in receiving feedback on the following questions: 

1. Do you agree with the structure and organization of the landscape?
2. What patient-centered economic outcomes do you believe are missing from the report?
3. What patient-centered economic outcomes noted in the report do not fully reflect your, or your community’s, perspective?
4. What economic outcomes captured in the report do you strongly believe are not sufficiently patient-centered?
5. What economic outcomes captured in the report are especially important to inform decisions made by you and others in your community?

​About this Request for Public Input
Input provided will be summarized and considered in the finalization of the landscape. A summary of how the input was considered will be made available following the input period. This request for input should not be construed as an intent, commitment, or promise to acquire services or solutions offered. PCORI will use information submitted by respondents at its own discretion and will not necessarily provide comments to respondent submissions. PCORI will not reimburse public input respondents for any expenses associated with responding to this opportunity, though PCORI sincerely appreciates respondents’ efforts and input.

Members of the public can decide whether to provide personal identifying information during any public input period. Any input you provide to PCORI, including but not limited to any documents or other materials and any identifying information submitted with your comments, are collected voluntarily and may be disclosed by PCORI on this website, elsewhere on the Internet, in any other public forum, or in other PCORI materials. By providing public input, you are consenting to their disclosure, use, and consideration by PCORI. PCORI makes input available as submitted and does not independently verify any aspect of input (e.g., content, organization affiliation or stakeholder designation). PCORI's full Website Privacy Policy is available here.

Posted: November 17, 2023