October 4-5 | #PCORI23


The Future of Patient Activation and Patient Engagement

Catherine Ames, B.A.

  • Patient Advocate, Writer, Speaker

Suzanne 'Suz' Schrandt, J.D.

  • Founder, CEO & Chief Patient Advocate of ExPPect and Board Member, Innovation and Value Initiative

The New Horizon for Health Research Funding and the Clinical Research Workforce

Vivian W. Pinn, M.D., FCAP, FASCP

  • Senior Scientist Emerita, FIC, NIH; Former Director (Retired), Office of Research on Women’s Health, NIH

Nakela L. Cook, M.D., MPH

  • Executive Director, PCORI


Powered by PCORnet®: Infrastructure to Fuel National-Scale Research

Rowena Dolor, M.D., MHS

  • Director, Duke Primary Care Research Consortium, Duke Clinical and Translational Research Institute Professor, General Internal Medicine, Department of Medicine, Duke University School of Medicine

Adrian Hernandez, M.D., MHS

  • Executive Director, Duke Clinical Research Institute Coordinating Center; Principal Investigator, PCORnet

Erin Holve, Ph.D., MPH

  • Chief of Research Infrastructure, PCORI
Headshot of Mariell Jessup

Mariell Jessup, M.D.

  • Chief Science and Medical Officer, American Heart Association; Emeritus Professor of Medicine, University of Pennsylvania

Hilary Marston, M.D., MPH

  • Chief Medical Officer, US Food and Drug Administration

Mark Pletcher, M.D., MPH

  • Professor of Epidemiology & Biostatistics, School of Medicine, University of California, San Francisco

Al Richmond, MSW

  • Executive Director Community-Campus Partnerships for Health; Co-Principal Investigator, North Carolina CEAL

Innovative Strategies for Implementation

Laura Anthony, Ph.D.

  • Director of Research, Division of Child and Adolescent Mental Health Professor, Department of Psychiatry & Behavioral Sciences, University of Colorado School of Medicine

Lori Kraden

  • Program Manager, Behavior Intervention Services, Fairfax County Public Schools, VA

Ana Lasso, M.D.

  • Division Head, Pediatric Pulmonology, Allergy and Sleep, University of Maryland Medical System

Lawrence Rhein, M.D., MPH

  • Department Chair, University of Massachusetts Department of Pediatrics Associate Professor of Pediatrics, UMASS Chan School of Medicine

Shari Rogal, M.D., MPH

  • Associate Professor of Medicine, Surgery, and Clinical and Translational Science, University of Pittsburgh Codirector of D&I Core, Center for Health Equity Research and Promotion, VA Pittsburgh

Breakout Sessions

Accountability Matters: How Health Systems Can Meaningfully Address Racism and Discrimination in Care Delivery

Georges Benjamin, M.D., MACP

  • Executive Director, American Public Health Association

Ebony Boulware, M.D., MPH

  • Dean, Wake Forest University School of Medicine Chief Science Officer, Advocate Health

Mason Dunn, J.D.

  • Director of Education and Research, MA LGBT Chamber of Commerce, Board Member, Equality Federation

Kimberly Seals Allers

  • Executive Director, Narrative Nation Founder, Irth App

Rupa Valdez, Ph.D.

  • Associate Professor at the University of Virginia; President of the Blue Trunk Foundation

CER to Impact: Implementation, Uptake and Sustainment of DIHC CER Results

Headshot of Amanda Barbeau

Amanda Barbeau, MPH

  • Program Officer, Clinical Effectiveness and Decision Science Program, PCORI

Joe Bonner, MPH

  • Senior Program Associate, Dissemination & Implementation Program, PCORI

Beverly Canin

  • Co-Chair, CARinG SCOREboard, City of Hope, CA; President, Breast Cancer Options, Kingston, NY

Christopher Landrigan, M.D., MPH

  • Chief of General Pediatrics, Boston Children's Hospital William Berenberg Professor of Pediatrics and Professor of Medicine, Harvard Medical School

Lisa Lowenstein, Ph.D., MPH

  • Assistant Professor, The University of Texas MD Anderson Cancer Center
2023 PCORI Annual Meeting Headshot of Peggy Markle

Peggy Markle

  • PCORI-Funded Study Patient and Family Advisor

Karen Sepucha, Ph.D.

  • Director, Health Decision Sciences Center, Massachusetts General Hospital Associate Professor, Harvard Medical School

Telehealth: Learnings from COVID-19-Related PCORI Investments and Future Directions

Jessica Ancker, Ph.D., MPH

  • Professor, Department of Biomedical Informatics and Department of Health Policy, Vanderbilt University Medical Center

Mucio Kit Delgado, M.D., M.S.

  • Associate Professor of Emergency Medicine & Epidemiology; Director, Penn Medicine Nudge Unit
2023 PCORI Annual Meeting Headshot of Angela Evans

Angela Evans

  • PCORI-Funded Study Patient Partner

Jennifer Kraschnewski, M.D., MPH

  • Director, Penn State Clinical and Translational Science Institute Professor, Department of Medicine, Penn State University

Eboni Winford, Ph.D., MPH

  • Director of Research and Health Equity, Cherokee Health Systems

Practicalities of Meaningful Engagement: A Menu of Tips and Resources from Experience

Hunter Beck

  • Family Research Partner Affiliation-Children's Hospital of Philadelphia

Tamarinda Godin, D.D.S., MPH

  • Associate Director, NYU Dentistry CariedAway Assistant Research Scientist, Department of Epidemiology & Health Promotion, NYU Dentistry
2023 PCORI Annual Meeting Headshot of Nicolas Oreskovic

Nicolas Oreskovic, M.D., MPH

  • Clinical Researcher, Massachusetts General Hospital; Assistant Professor, Pediatrics, Harvard Medical School

Brendaly Rodriguez, M.A., CPH

  • Senior Engagement Officer, PCORI

Ryan Richard Ruff, Ph.D., MPH

  • Associate Professor, Department of Epidemiology & Health Promotion, New York University
2023 PCORI Annual Meeting Headshot of Naudy A. Ocasio Portalatin

Naudy A. Ocasio Portalatín, Au.D.

  • Audiologist/Ph.D. Student, Department of Communication Sciences and Disorders, University of South Florida
2023 PCORI Annual Meeting Headshot of Jessica Wolfe

Jessica Wolfe, MPH, M.A.

  • Project Director, Vinfen

Mental Health Disorders in the Perinatal Period - Underdiagnosed and Undertreated

Nancy Byatt, D.O., M.S., MBA, DFAPA, FACLP

  • Professor with Tenure of Psychiatry, Obstetrics & Gynecology, and Population & Quantitative Health Sciences UMass Chan Medical School/UMass Memorial Health

Camille Clare, M.D., MPH, CPE, FACOG

  • Tenured Professor and Chair, Downstate Health Sciences University, College of Medicine, Department of Obstetrics and Gynecology Professor of Health Policy & Management, DHSU, School of Public Health
Headshot of Adrienne Marks Griffen

Adrienne Marks Griffen, MPP

  • Executive Director, Maternal Mental Health Leadership Alliance

Kay Matthews

  • Community Health Worker, Motivator, Advocate, and Mental Health and Wellness Advisor

Amber Ray, PharmD/PHM

  • Deputy Legislative Director and Health Policy Advisor, Congresswoman Lisa Blunt Rochester

Stakeholder-driven Patient-Centered Research Agendas and Evaluation of Emerging Interventions in Long COVID

2023 PCORI Annual Meeting Headshot of Don Beyer

Don Beyer

  • US Representative, Virginia's 8th District

Liza Fisher, MBA, RYT® 200

  • Cofounder, BIPOC Equity Agency Board/Executive Committee Member, Dysautonomia International & Long Covid Alliance

Sara Santarossa, Ph.D.

  • Research Scientist, Department of Public Health Sciences, Henry Ford Health Scientific Director, Patient Engaged Research Center (PERC), Henry Ford Health

Sarah Schenck, M.D., FACP

  • Medical Director, Virtualist Medicine, ChristianaCare

Jonathan Treadwell, Ph.D.

  • Director of the ECRI-Penn Evidence-based Practice Center, ECRI
2023 PCORI Annual Meeting Headshot of Jesse Wagner

Jesse Wagner, M.A.

  • Research Analyst, Evidence Contracts and Consulting, ECRI

"Ask Me Anything" with PCORI-funded Investigators and Program Staff

Allison Ambrosio, MPH

  • Associate Director, Science Operations, Healthcare Delivery and Disparities Research, PCORI; Interim Associate Director, Science Operations, Clinical Effectiveness and Decision Science, PCORI

Lisa Goldman Rosas, Ph.D., MPH

  • Assistant Professor, Department of Epidemiology and Population Health and Department of Medicine, Division of Primary Care and Population Health, Stanford School of Medicine.

Alyssa Krumlauf, Ph.D.

  • Associate Director, Clinical Effectiveness and Decision Science Program, PCORI

Catherine Palmer, Ph.D.

  • Professor, University of Pittsburgh Director, Audiology UPMC

Vivian Towe, Ph.D., MSc, M.A.

  • Senior Program Officer, Healthcare Delivery & Disparities Research Program, PCORI

Improving Mental Health for People with IDD Through Patient-Centered Research

William Bennett, M.D.

  • Associate Professor of Pediatrics, Department of Pediatrics, Indiana University School of Medicine Scientific Director, Patient Engagement Core, Indiana CTSI

Laura Grofer Klinger, Ph.D.

  • Associate Professor, Department of Psychiatry, University of North Carolina at Chapel Hill; Executive Director, UNC TEACCH Autism Program

Lauren Kenworthy, Ph.D.

  • Chief, Pediatric Neuropsychology Division Director, Center for Autism Children’s National Hospital Professor, Pediatrics, Neurology, Psychiatry George Washington University Medical School

Jessica Kramer, Ph.D., OTR/L, FAAIDD

  • Associate Professor, University of Florida

Megan Leimkuhler, MPH

  • Program Associate, Clinical Effectiveness and Decision Science Program, PCORI

Destiny Watkins

  • Self-Advocate, DoTerra Wellness Advocate

PCORI Rare Disease Research: Portfolio Highlights and Future Directions

Jane Burns, M.D.

  • Professor, Department of Pediatrics, University of California San Diego

Danielle Dong, ScM, CGC

  • Scientific Advocacy Lead, Global Medical Affairs Rare Disease, Sanofi PCORI Rare Disease Advisory Panel Member

Anitha John, M.D., Ph.D.

  • Medical Director, Washington Adult Congenital Heart, Children's National Professor of Pediatrics, George Washington University School of Medicine

Sophie Lanzkron, M.D., MHS

  • Professor of Medicine, Johns Hopkins School of Medicine

Ruth Phillippi, M.S.

  • Program Lead, Washington Adult Congenital Heart Program at the Children's National Hospital

How PCORI is Advancing Social Determinants of Health Data Collection and Use in Research to Promote Health Equity

Mary Charlson, M.D.

  • William T. Foley Distinguished Professor in Medicine, Weill Cornell Medicine

Patricia Keenan, MHS, Ph.D.

  • Senior Researcher, Agency for Healthcare Research and Quality

Nik Koscielniak, Ph.D., MPH

  • Program Officer, PCOR Infrastructure and Innovation Program, PCORI

Keith Marsolo, Ph.D.

  • Associate Professor, Department of Population Health Sciences, Duke University School of Medicine

Maritza Martinez

  • Community Health Worker, Case Manager, Patient

The Heart of the Matter: Creating Pathways to Optimal Cardiovascular Health for Women across the Lifespan

Heidi Dohse, NBC-HWC

  • Founder/President, Tour de Heart
2023 PCORI Annual Meeting Headshot of Lindsay Ferrante

Lindsay Ferrante

  • Patient Speaker (Cardiovascular Disease Survivor)

Celina Gorre, MPH, MPA

  • Chief Executive Officer, WomenHeart

Sharon Herring, M.D., MPH

  • Associate Professor, Department of Medicine, Lewis Katz School of Medicine at Temple University Director, Program for Maternal Health Equity, Center for Urban Bioethics, Temple University

Garima Sharma, M.D., FACC, FAHA

  • Director, Cardio-Obstetrics and Cardiovascular Women’s Health, Inova Health System
2023 PCORI Annual Meeting Headshot of Pamela Thomas

Pamela E. Thomas

  • Heart Health Advocate/Patient

Rebecca Thurston, Ph.D., FABMR, FAPS

  • Pittsburgh Foundation Chair of Women’s Health and Dementia, University of Pittsburgh; Professor of Psychiatry, Psychology, Epidemiology, and Clinical and Translational Science

An Overview of PCORI’s Investment and Stakeholder Engagement in PTSD

Joe Bonner, MPH

  • Senior Program Associate, Dissemination & Implementation Program, PCORI

Joan Cook, Ph.D.

  • Professor, Yale School of Medicine

Marylene Cloitre, Ph.D.

  • Research Health Scientist, National Center for PTSD Dissemination and Training Division, Clinical Professor (Affiliation) Stanford University Department of Psychiatry and Behavioral Sciences

Leslie Einhorn

  • Founding Director, Children's After School Arts

Beth Kelsey, Ed.D., APRN, WHNP-BC

  • Director of Publications, Editor in Chief Women’s Healthcare: A Clinical Journal for NPs, National Association of Nurse Practitioners in Women's Health (NPWH)

Dismantling Ableism through Partner-Driven Health Research

Headshot of Tawara Goode

Tawara Goode, M.A.

  • Associate Professor and Director, Georgetown University National Center for Cultural Competence, Director, Georgetown University Center for Excellence in Developmental Disabilities

Stephanie DeLuca, Ph.D.

  • Policy Advisor, Office of Sen. Tammy Duckworth

Lisa Iezzoni, M.D., MSc

  • Professor of Medicine, Harvard Medical School; Health Policy Research Center, Mongan Institute, Massachusetts General Hospital

Katherine McDonald, Ph.D.

  • Professor, Public Health Associate Dean of Research, Falk College Syracuse University

Megan Morris, Ph.D., MPH

  • Associate Professor in the Division of General Internal Medicine at the University of Colorado School of Medicine. Founder and Director of the Disability Equity Collaborative

Ensuring a Diverse and Sustainable Learning Health System Workforce: AHRQ & PCORI Partnership on LHS Scientist Training and Career Development

Timothy Beebe, Ph.D.

  • Mayo Professor and Interim Dean, School of Public Health, University of Minnesota
2023 PCORI Annual Meeting Headshot of Francis Chesley

Francis D. Chesley, Jr., M.D.

  • Director, Office of Extramural Research, Education, and Priority Populations; Director, Offices of Minority and Women's Health, AHRQ

Felicity Enders, Ph.D., MPH

  • Professor of Biostatistics, Mayo Clinic Director, Office for Research Equity, Inclusion, and Diversity, Mayo Clinic

Erin Holve, Ph.D., MPH

  • Chief of Research Infrastructure, PCORI

Kendra Liljenquist, Ph.D.

  • Assistant Professor of Pediatrics, University of Washington School of Medicine; Primary Investigator, Seattle Children's Research Institute

Paula Lozano, M.D., MPH

  • Director, Center for Accelerating Care Transformation, Kaiser Permanente Washington; Senior Associate Medical Director for Research and Translation, Washington Permanente Medical Group

Cultivating Meaningful Partnerships in Patient-Centered Outcomes Research: Updating and Enhancing PCORI’s Guidance on Engagement: Engagement Rubric

Jen Brown, MPH

  • Codirector & Cofounder, Alliance for Research in Chicagoland Communities (ARCC) at Northwestern University

Kristin L. Carman, Ph.D., M.A.

  • Director, Public and Patient Engagement, PCORI
2023 PCORI Annual Meeting Headshot of Chidinma Ibe

Chidinma Ibe, Ph.D.

  • Assistant Professor of General Internal Medicine, Johns Hopkins University School of Medicine; Associate Director of Community Engagement, Johns Hopkins Center for Health Equity

Jen Lavoie, B.A.

  • Patient Partner Representative, American Institutes of Research

Donald Nease, M.D.

  • Professor, Department of Family Medicine, Director of Community Engagement and Health Equity, Colorado Clinical and Translational Sciences Institute University of Colorado - Anschutz Medical Campus
2023 PCORI Annual Meeting Headshot of Karriem Watson

Karriem Watson, DHSc, M.S., MPH

  • Chief Engagement Officer, NIH All of Us Research Program

Addressing the Needs of Older Adults: Highlights from PCORI's Funding Initiatives

Headshot of Yawinde Akinbami

Yewande Akinbami, M.D., MPH

  • Program Officer, Clinical Effectiveness & Decision Science Program, PCORI

Sarah Khasawinah, Ph.D.

  • Deputy Staff Director for Ranking Member Mike Braun

Benzi Kluger, M.D., M.S.

  • Professor, Departments of Neurology and Medicine, University of Rochester Medical Center Director, Neuropalliative Care Service Director, Palliative Care Research Center

Tabassum Majid, Ph.D., MAgS

  • Program Officer, Healthcare Delivery & Disparities Program, PCORI

Beth Matthews-Bradshaw, A.B.

  • Vice President for Patient Engagement and Research, Alliance for Aging Research

David Reuben, M.D.

  • Archstone Professor Chief. Division of Geriatrics, David Geffen School of Medicine at UCLA

Kali S. Thomas, Ph.D.

  • Associate Director of Health Services Research, Center for Equity on Aging, School of Nursing, Johns Hopkins University

What's Happening at PCORI?

The Patient-Centered Outcomes Research Institute sends weekly emails about opportunities to apply for funding, newly funded research studies and engagement projects, results of our funded research, webinars, and other new information posted on our site.

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