PCORI

At PCORI, we notice when organizations put patients and their caregivers front and center in health care. One such way organizations are doing this is by establishing patient and family advisory councils. These councils work to improve delivery of health care. They think of healthcare professionals...

A rare disease, by definition, affects fewer than 200,000 individuals in the United States. Up to 30 million Americans have a rare disease, and most conditions are poorly understood. The National Organization for Rare Disorders (NORD), the voice of the rare disease community, and PCORI are working...

When researchers partner with patients and other stakeholders in patient-centered research, the relationships can present challenges and opportunities for growth on both sides. PCORI hosted a webinar this month that addressed these challenges and presented strategies to help researchers and...

Diabetes runs in my family. Three of my four grandparents had type 2 diabetes, which is where your body doesn’t use insulin properly, and your blood sugar levels get too high. I also have an uncle with type 1, where your body doesn’t make insulin at all. I knew I had multiple risk factors for type...