PCORI

Providing equitable care is my passion, but it’s a challenge when patients span two different worlds in the same state. Kathleen Kieran, MD, MSc, MME I care for patients as a pediatric urologist at Seattle Children’s Hospital and at an Eastern Washington outreach clinic. I also mentor University of...

It is devastating for anyone to lose somebody, especially when that person is a child. When my young, twin daughter received the diagnosis of stage IV neuroblastoma, a cancer of the nerve cells, I couldn’t understand how a child could suffer from this awful disease. She lost her life in 1985. Alma...

Editor’s Note: The views expressed in this piece are those of the author and do not necessarily reflect the views of PCORI. There are an estimated 25 to 30 million rare disease sufferers in the United States. My name is Doug Lindsay, and I am one of them. This is my story.

Wendy Keller was a beloved sister, friend, mother, and grandma. At eight years old, she and her family emigrated to the United States from England. Wendy built a wonderful life – graduating from the University of Pittsburgh, becoming a physical therapist, marrying, and raising a family. She was a...