PCORI

Wendy Keller was a beloved sister, friend, mother, and grandma. At eight years old, she and her family emigrated to the United States from England. Wendy built a wonderful life – graduating from the University of Pittsburgh, becoming a physical therapist, marrying, and raising a family. She was a...

In 1969, six patients on dialysis at Kings County Hospital in Brooklyn formed a group to elevate kidney disease awareness, call for better educational resources, and create a community for patients living with chronic kidney disease. They met twice a week in the hospital ward—while hooked up to...

A rare disease, by definition, affects fewer than 200,000 individuals in the United States. But combined, up to 30 million Americans have a rare disease, and most conditions are poorly understood. That combined burden is why one of PCORI’s six multi-stakeholder advisory groups is the Advisory Panel...

Just one year after celebrating my 50th birthday, I was walking down a New York City street with my mother on a misty, gray November day when my phone rang. My life was wonderful up to that point, but looking back, I can see that the weather was an appropriate backdrop for the news I was about to...