PCORI

In 1969, six patients on dialysis at Kings County Hospital in Brooklyn formed a group to elevate kidney disease awareness, call for better educational resources, and create a community for patients living with chronic kidney disease. They met twice a week in the hospital ward—while hooked up to...

A rare disease, by definition, affects fewer than 200,000 individuals in the United States. But combined, up to 30 million Americans have a rare disease, and most conditions are poorly understood. That combined burden is why one of PCORI’s six multi-stakeholder advisory groups is the Advisory Panel...

Just one year after celebrating my 50th birthday, I was walking down a New York City street with my mother on a misty, gray November day when my phone rang. My life was wonderful up to that point, but looking back, I can see that the weather was an appropriate backdrop for the news I was about to...

One of PCORI’s core priorities is funding research that can improve the health of underserved populations. That includes people who are transgender—an umbrella term describing individuals whose gender identity differs from the sex they were assigned at birth—because they are at higher risk for...