Annual Meeting Starts Tomorrow: How PCORI Is Changing the Conversation about Health Research
About Us
- About PCORI
- The PCORI Strategic Plan
- Governance
- Evaluating Our Work
- PCORI's Advisory Panels
- Procurement Opportunities
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Provide Input
- Draft Key Questions: Systematic Review of the Impact of Doula Support During Pregnancy, Childbirth and Beyond (2024)
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Past Opportunities to Provide Input
- Patient-Centered Economic Outcomes Landscape (2023-2024)
- Systematic Review of Audio Care for the Management of Mental Health and Chronic Conditions (2023) -- Draft Key Questions
- Proposed New Methodology Standards for Usual Care as a Comparator (2023)
- Stakeholder Views on Components of 'Patient-Centered Value' in Health and Health Care (2023)
- PCORI's Proposed Research Agenda (2021-2022)
- Proposed National Priorities for Health (2021)
- Proposed Principles for the Consideration of the Full Range of Outcomes Data in PCORI-Funded Research (2020)
- Proposed New PCORI Methodology Standards (2018)
- Data Access and Data Sharing Policy: Public Comment (2017)
- Proposed New PCORI Methodology Standards (2017)
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Comment on the Proposed New and Revised PCORI Methodology Standards (2016)
- 1. Standards for Formulating Research Questions
- 10: Standards for Studies of Diagnostic Tests
- 12. Standards on Research Designs Using Clusters
- 13: General Comments on the Proposed Revisions to the PCORI Methodology Standards
- 2: Standards Associated with Patient-Centeredness
- 3: Standards for Data Integrity and Rigorous Analysis
- 4: Standards for Preventing and Handling Missing Data
- 5: Standards for Heterogeneity of Treatment Effects
- 6: Standards for Data Registries
- 7: Standards for Data Networks as Research-Facilitating Structures
- 8. Standards for Causal Inference Methods
- 9. Standards for Adaptive Trial Designs
- Peer-Review Process Comments (2014)
- Draft Methodology Report Public Comment Period (2012)
- Leadership
We’re just one day away from PCORI’s second Annual Meeting. I know that all of those who helped to put together this gathering look forward to hosting some 1,200 members of the healthcare community for an in-person update on our stakeholder-guided approach to comparative clinical effectiveness research (CER). We will be welcoming others via webcast.
The theme of this year’s meeting is “Changing the Conversation about Health Research.” We think that aptly sums up what may well be one of PCORI’s most lasting impacts—seeking to make health research more patient-centered and stakeholder-driven. In our case, of course, the focus is on studies that compare different care approaches to show what works best, for whom, based on outcomes that matter to patients. The goal is to help patients and those who care for them make better-informed decisions about the healthcare choices they make daily.
We’ll explore this and related themes during our more than two days of exciting keynote sessions, plenary panels, and workshops. We hope you’ll join us by signing up to watch the plenary sessions via webcast and participate in our first Facebook Live session, on a crowdsourced topic: smarter use of antibiotics. You can also join the conversation on Twitter using the hashtag #PCORI2016.
Bringing Together Patients and Researchers
Our opening plenary session will look at real-world approaches to making patients’ needs and values into meaningful elements of health research and care. That will be followed by an exploration of how the healthcare landscape is evolving to become more patient-centered and how the kind of work we support can move that process along. We’ll then do a deep dive into how patient-centered CER can help us address one our nation’s most pressing healthcare challenges—caring for people with multiple chronic conditions. And we’ll close with a plenary that gets to the heart of what we do: changing the culture of research itself by bringing together stakeholders from across the healthcare community to help drive more useful, relevant research about what works best for individual patients.
Throughout the meeting, speakers will update attendees on the patient-centered CER studies and related projects we support—with more than $1.5 billion to date. Those discussions will include results that are starting to emerge from our earliest-funded studies, as well as promising reports of progress in other projects.
Community Building for Research Done Differently
Beyond that, we see this meeting as an opportunity to further grow and nurture the community that all of us—researchers, patients, caregivers, clinicians, insurers, employers, industry representatives, and others—work together to build. That community building supports our core commitment to “research done differently.”
We offer a big round of applause to everyone who helped organize this meeting. We are especially appreciative of the Steering Committee made up of representatives of the many stakeholder groups we serve.
But our biggest thanks go to the members of the healthcare community who work with us, year in and year out, as we pursue our shared mission. These are the people who help us select the most important patient-centered research questions to study; review the proposals we receive for funding; serve as researchers, patients, or other stakeholder partners on funded studies; or generously donate their time as study participants. We know that we couldn’t do our work without them.
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Comments
November 22, 2016, 3:54 PM
Comment by PCORI,
November 17, 2016, 9:08 PM
Comment by Sue Kullen,
I am looking for innovative partners for both a medical and neighborhood component for an Aging in Place project. How can I best approach your group for potential partners?
Hi Sue. You'd be able to find more information through our Engagement team's page, and members from our Patient Engagement or Stakeholder Engagement teams would be able to answer your questions more directly. Thanks for your comment.