- The PCORI Strategic Plan
- Our Programs
- Our Vision & Mission
- Financial Statements and Reports
- The PCORI Strategic Plan
- Board of Governors
- Methodology Committee
- Authorizing Law
- Evaluating Our Work
- PCORI's Advisory Panels
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- Draft Key Questions: Systematic Review of Audio Care for the Management of Mental Health and Chronic Conditions (2023)
- Patient-Centered Economic Outcomes Landscape (2023-2024)
Past Opportunities to Provide Input
- Proposed New Methodology Standards for Usual Care as a Comparator (2023)
- Stakeholder Views on Components of 'Patient-Centered Value' in Health and Health Care (2023)
- PCORI's Proposed Research Agenda (2021-2022)
- Proposed National Priorities for Health (2021)
- Proposed Principles for the Consideration of the Full Range of Outcomes Data in PCORI-Funded Research (2020)
- Proposed New PCORI Methodology Standards (2018)
- Data Access and Data Sharing Policy: Public Comment (2017)
- Proposed New PCORI Methodology Standards (2017)
Comment on the Proposed New and Revised PCORI Methodology Standards (2016)
- 1. Standards for Formulating Research Questions
- 10: Standards for Studies of Diagnostic Tests
- 12. Standards on Research Designs Using Clusters
- 13: General Comments on the Proposed Revisions to the PCORI Methodology Standards
- 2: Standards Associated with Patient-Centeredness
- 3: Standards for Data Integrity and Rigorous Analysis
- 4: Standards for Preventing and Handling Missing Data
- 5: Standards for Heterogeneity of Treatment Effects
- 6: Standards for Data Registries
- 7: Standards for Data Networks as Research-Facilitating Structures
- 8. Standards for Causal Inference Methods
- 9. Standards for Adaptive Trial Designs
- Peer-Review Process Comments (2014)
- Draft Methodology Report Public Comment Period (2012)
Health disparities are pervasive and persistent in the United States. Despite growing recognition that disparities exist, health inequities based on gender, race, socioeconomic status, and other demographic factors remain challenging to address.
PCORI-funded researcher Kyaien Conner, PhD, MPH, LSW, an associate professor of mental health law and policy in the College of Behavioral and Community Sciences at the University of South Florida, has focused on health disparities throughout her career and even recently helped draft legislation to foster health equity in Florida.
Helping Patients of Color Seek Care
As a clinical social worker who went on to pursue a Master of Public Health and doctorate in social work, Conner initially became involved in disparities research related to mental health. Some of her work has explored racial differences in the utilization of mental health services. Underutilization of mental health care has often been observed in communities of color.
[Health disparities] still exist and in many areas are growing wider.
Conner notes that through her work, she has witnessed the “value of peer educators” in helping people of color seek care for depression and other mental health conditions. Conner also explains she has been able to use her clinical and personal background “to develop culturally sensitive” behavioral health tools for underserved communities. Nevertheless, Conner laments that health disparities "still exist and in many areas are growing wider."
In 2020, Conner was awarded PCORI funding for health disparities research examining the role of peer support to reduce racial disparities related to hospital readmissions in Florida. Conner says PCORI’s focus on “community-engaged research” in a manner that truly “enhances community voices” prompted her to apply for funding. Conner adds that she especially appreciates PCORI’s emphasis on the “use of community expertise” to develop “meaningful, valuable, and hopefully, sustained,” patient-centered projects.
Dismantling Disparities in Care Transitions
The transition period between being released from the hospital and following up for outpatient care can be a difficult time. The most vulnerable patients often experience recurrent symptoms following a hospital stay and may wind up back in the hospital without outpatient support. Rehospitalization is linked to worse health outcomes overall. Conner notes that older Black and Hispanic/Latino adults are more likely to be readmitted to the hospital than other older adults. One possible explanation for this disparity is that, historically, older people of color have not been well represented in research regarding healthcare transitions.
Conner plans to address this in her study by comparing interventions to help prevent hospital readmissions among Black and Hispanic/Latino older adults. One group of patients will meet with health coaches prior to being discharged from the hospital to discuss strategies for staying well. Another group will receive support both from health coaches and trained peer mentors. A third group will receive usual care from the hospital team. Conner hopes to determine whether the addition of peer mentor support will help patients feel more “connected to their community” and better able to identify resources to remain well at home.
Study recruitment was delayed by the COVID-19 pandemic but is expected to begin later this year. Conner is delighted that her team’s preliminary work has already had a positive impact on research infrastructure at the recruiting hospitals. She notes that the creation of staff positions to foster recruitment of diverse patient participants will have a beneficial effect on research beyond her individual study.
[Health disparities] are about so much more than lack of access to health care.
Journey to Health Equity
In 2021, Conner helped write a bill to increase financial and other resources for the Office of Minority Health and Health Equity in Florida. The bill was passed into law and requires each county health department in Florida to designate a liaison whose focus is health equity. Conner hopes that the implementation of this and other new policies will help to address structural racism as a "public health crisis."
As Conner notes, health disparities have deep roots in our country’s political, legal, and economic framework and "are about so much more than lack of access to health care." She adds that through the studies it funds, PCORI’s recognition of the widespread effects of systemic racism is central to ultimately achieving health equity.
What's Happening at PCORI?
The Patient-Centered Outcomes Research Institute sends weekly emails about opportunities to apply for funding, newly funded research studies and engagement projects, results of our funded research, webinars, and other new information posted on our site.