Introducing the Engagement Tool and Resource Repository for Patient-Centered Outcomes Research
- The PCORI Strategic Plan
- Clinical Effectiveness and Decision Science
- Dissemination and Implementation
- Evaluation and Analysis
- Healthcare Delivery and Disparities Research
- PCOR Infrastructure & Innovation
- Our Vision & Mission
- Financial Statements and Reports
- The PCORI Strategic Plan
- Board of Governors
- Methodology Committee
- Authorizing Law
- Evaluating Our Work
- PCORI's Advisory Panels
- Procurement Opportunities
Past Opportunities to Provide Input
- Stakeholder Views on Components of 'Patient-Centered Value' in Health and Health Care (2023)
- PCORI's Proposed Research Agenda (2021-2022)
- Proposed National Priorities for Health (2021)
- Proposed Principles for the Consideration of the Full Range of Outcomes Data in PCORI-Funded Research (2020)
- Proposed New PCORI Methodology Standards (2018)
- Data Access and Data Sharing Policy: Public Comment (2017)
- Proposed New PCORI Methodology Standards (2017)
Comment on the Proposed New and Revised PCORI Methodology Standards (2016)
- 1. Standards for Formulating Research Questions
- 10: Standards for Studies of Diagnostic Tests
- 12. Standards on Research Designs Using Clusters
- 13: General Comments on the Proposed Revisions to the PCORI Methodology Standards
- 2: Standards Associated with Patient-Centeredness
- 3: Standards for Data Integrity and Rigorous Analysis
- 4: Standards for Preventing and Handling Missing Data
- 5: Standards for Heterogeneity of Treatment Effects
- 6: Standards for Data Registries
- 7: Standards for Data Networks as Research-Facilitating Structures
- 8. Standards for Causal Inference Methods
- 9. Standards for Adaptive Trial Designs
- Peer-Review Process Comments (2014)
- Draft Methodology Report Public Comment Period (2012)
- Past Opportunities to Provide Input
- Executive Team
- Office of the Executive Director
- Program Support and Information Management
- Staff Conflict of Interest Disclosures
PCORI requires that its funded projects meaningfully engage patients and other stakeholders throughout the research process. Engagement with patients and those who care for them ensures that study results are more relevant for decision making, and thus, more likely to be taken up in practice. But we know that while engaging patients and stakeholders has many benefits for the projects and those who participate, for some researchers it remains new and unfamiliar and can seem challenging.
One of the ways that PCORI supports researchers, patients, and stakeholder partners working together is promoting the uptake of engagement practices and methodologies within the broader healthcare research community. That’s why we are excited to share our new Engagement Tool and Resource Repository for Patient-Centered Outcomes Research (PCOR), which we developed to help spread these practices.
This peer-to-peer repository houses more than 150 tools and resources—that number will increase over time—that can be used to inform the work of others in the field when planning and conducting PCOR. These tools were generated from PCORI-funded research projects, Engagement Awards, and other relevant stakeholder resources, and cover a wide range of focus areas, clinical conditions, populations, and more.
We hope this centralized resource helps research teams and their partners work better together. To help you find tools that are most relevant to your work, every resource is tagged based on key characteristics, including tool type, intended phase of research, initial health and population focus, and more. These tags also allow users to search the repository using keywords and phrases to find tools that will best meet their needs at any phase of a project, regardless of their engagement approach. Users can also utilize the keyword search box to find tools and resources by other parameters of interest.
Tools were included in this repository only if they met specific criteria, including usefulness, adaptability, and ability to demonstrate some success in real-world settings. For instance, a team looking for ideas on how to train patient partners on the principles and methods of PCOR will find several examples of trainings developed for this purpose in the educational materials section. Teams interested in reviewing examples of stakeholder advisory board charters will find several that have been used in practice in the team management section. We believe that these practice-based tools will enable valuable peer learning opportunities for individuals and organizations.
PCORI-Funded Awardees: If you would like to submit a tool developed through a PCORI-funded project for potential inclusion in the repository, please send your submission to [email protected].
August 12, 2020, 12:23 PM
Comment by PCORI Blog,
August 2, 2020, 10:55 AM
Comment by PJ,
Dear PCORI, Lots of tools out there. Which is a strong tool supported by PCORI for involvement of both patient focus groups as well as individual patients with a specific musculoskeletal condition involved in supporting (providing knowledge and guidance) on i) adaptation and implementation of a therapy and ii) study design for a randomized controlled trial of the therapy?
January 31, 2020, 8:30 PM
Comment by PCORI Blog,
Hi, Danielle, thanks for reading? We'd be happy to help. What kind of resources are you looking for, and what type of study are you interested in? Thanks again for reading.
January 31, 2020, 3:36 PM
Comment by Danielle Eacobacci,
Looking for resources and possible future participation with study.
What's Happening at PCORI?
The Patient-Centered Outcomes Research Institute sends weekly emails about opportunities to apply for funding, newly funded research studies and engagement projects, results of our funded research, webinars, and other new information posted on our site.
Thank you so much for your question, PJ. I have forwarded your query to our Engagement team. We truly appreciate your readership of our blog.