- The PCORI Strategic Plan
- Our Programs
- Our Vision & Mission
- Financial Statements and Reports
- The PCORI Strategic Plan
- Board of Governors
- Methodology Committee
- Authorizing Law
- Evaluating Our Work
- PCORI's Advisory Panels
- Procurement Opportunities
- Patient-Centered Economic Outcomes Landscape (2023-2024)
Past Opportunities to Provide Input
- Systematic Review of Audio Care for the Management of Mental Health and Chronic Conditions (2023) -- Draft Key Questions
- Proposed New Methodology Standards for Usual Care as a Comparator (2023)
- Stakeholder Views on Components of 'Patient-Centered Value' in Health and Health Care (2023)
- PCORI's Proposed Research Agenda (2021-2022)
- Proposed National Priorities for Health (2021)
- Proposed Principles for the Consideration of the Full Range of Outcomes Data in PCORI-Funded Research (2020)
- Proposed New PCORI Methodology Standards (2018)
- Data Access and Data Sharing Policy: Public Comment (2017)
- Proposed New PCORI Methodology Standards (2017)
Comment on the Proposed New and Revised PCORI Methodology Standards (2016)
- 1. Standards for Formulating Research Questions
- 10: Standards for Studies of Diagnostic Tests
- 12. Standards on Research Designs Using Clusters
- 13: General Comments on the Proposed Revisions to the PCORI Methodology Standards
- 2: Standards Associated with Patient-Centeredness
- 3: Standards for Data Integrity and Rigorous Analysis
- 4: Standards for Preventing and Handling Missing Data
- 5: Standards for Heterogeneity of Treatment Effects
- 6: Standards for Data Registries
- 7: Standards for Data Networks as Research-Facilitating Structures
- 8. Standards for Causal Inference Methods
- 9. Standards for Adaptive Trial Designs
- Peer-Review Process Comments (2014)
- Draft Methodology Report Public Comment Period (2012)
Each week throughout April, in recognition of National Minority Health Month, PCORI will spotlight health conditions that disproportionately affect communities of color. One of PCORI's National Priorities for Health is to achieve health equity. As part of this mission, we will also share information about PCORI-funded studies aimed to address health disparities affecting underrepresented communities. Please check back as we highlight different health conditions and PCORI-funded projects. Click here to learn more about National Minority Health Month.
Chronic kidney disease (CKD) disproportionately affects people and communities of color. According to the National Institutes of Health (NIH), African Americans, Hispanics, and American Indians/Alaska Natives are at higher risk of developing CKD compared to their counterparts of other racial or ethnic identities. The Centers for Disease Control and Prevention (CDC) reports that 16% of non-Hispanic Black adults and 14% of Hispanic adults in the United States have CKD, compared to only 13% of non-Hispanic White or Asian adults in the United States. The NIH notes that higher risk for CKD among these groups is primarily due to higher risk for other conditions such as diabetes and high blood pressure, both of which are highly prevalent among Black, Latino, and Native American patients in the United States.
Achieving health equity requires that people of color are included in research proportionally to the impact of CKD on their communities. One PCORI study is working with historically underrepresented, Black participants living with diabetes to compare various methods to improve self-care, which in turn can help to prevent kidney disease. Another study worked with a group of participants, 97 percent of whom were Black or Hispanic, receiving treatment for kidney failure. The addition of a primary care provider to the treatment team was associated with improvements in the patients’ quality of care and life.
To learn more about PCORI’s patient-centered work on chronic kidney disease, click here.
What's Happening at PCORI?
The Patient-Centered Outcomes Research Institute sends weekly emails about opportunities to apply for funding, newly funded research studies and engagement projects, results of our funded research, webinars, and other new information posted on our site.