- The PCORI Strategic Plan
- Clinical Effectiveness and Decision Science
- Dissemination and Implementation
- Evaluation and Analysis
- Healthcare Delivery and Disparities Research
- Research Infrastructure
- Our Vision & Mission
- Financial Statements and Reports
- The PCORI Strategic Plan
- Board of Governors
- Methodology Committee
- Authorizing Law
Evaluating Our Work
- PCORI's Goals (2013)
- Planning Our Organizational Learning, Reporting Our Results
- Evaluating Key Aspects of Our Work
- PCORI Evaluation Group (PEG)
- PCORI's Advisory Panels
- Procurement Opportunities
- Stakeholder Views on Components of 'Patient-Centered Value' in Health and Health Care: A Request for Input
Past Opportunities to Provide Input
- PCORI's Proposed Research Agenda (2021-2022)
- Proposed National Priorities for Health (2021)
- Proposed Principles for the Consideration of the Full Range of Outcomes Data in PCORI-Funded Research (2020)
- Proposed New PCORI Methodology Standards (2018)
- Data Access and Data Sharing Policy: Public Comment (2017)
- Proposed New PCORI Methodology Standards (2017)
Comment on the Proposed New and Revised PCORI Methodology Standards (2016)
- 1. Standards for Formulating Research Questions
- 10: Standards for Studies of Diagnostic Tests
- 12. Standards on Research Designs Using Clusters
- 13: General Comments on the Proposed Revisions to the PCORI Methodology Standards
- 2: Standards Associated with Patient-Centeredness
- 3: Standards for Data Integrity and Rigorous Analysis
- 4: Standards for Preventing and Handling Missing Data
- 5: Standards for Heterogeneity of Treatment Effects
- 6: Standards for Data Registries
- 7: Standards for Data Networks as Research-Facilitating Structures
- 8. Standards for Causal Inference Methods
- 9. Standards for Adaptive Trial Designs
- Peer-Review Process Comments (2014)
- Draft Methodology Report Public Comment Period (2012)
- Executive Team
- Office of the Executive Director
- Program Support and Information Management
- Staff Conflict of Interest Disclosures
Patients and caregivers are becoming more deeply involved in research that evaluates the effectiveness of different healthcare options. In the past, when patients were involved in research, they generally participated only as study subjects. Now, patients increasingly serve as members of research teams or advisory groups, contributing their perspectives to make research findings more useful to patients, focus on the outcomes that matter most to patients, and aid decision making about health and heath care.
Patient engagement in research was the subject of PCORI’s first live Twitter Q&A (#PatientHC), an hour-long event hosted by Health Affairs. This event grew out of our support for Health Affairs’ theme issue on patient engagement, published in February 2013, and production of three videos illustrating patient engagement in healthcare decisions.
I was pleased to address the insightful questions and respond to the thoughtful comments received (See the Q&A below.). It was great to have so many participants jumping into the conversation and sharing their views. Questions included:
- How can patients with excellent research ideas connect with researchers to bring ideas to life?
- What are some ways the researcher/patient relationship can be re-envisioned to be more egalitarian?
- How can we get community health clinics involved in CER [comparative effectiveness research]?
One participant suggested, in typical Twitter shorthand, “Treating w/out understanding pt [patient] goals/values like getting in cab & saying take me to airport--You end up at JFK instead of LGA.”
Response to the event was overwhelmingly positive. I apologize to those who submitted questions that I didn’t have time to answer. Stay tuned--we plan to hold another Twitter Q&A soon. Hope you will join us then. Keep your eye on @PCORI on Twitter.
For the more on our Twitter chat, check out Health Affairs’ blog post.
November 25, 2014, 2:38 PM
Comment by PCORI,
Thank you for your feedback. We agree that there are important patient-centered outcomes research questions that include comparisons of herbal medicines and other complementary and alternative treatments. We hope that you will consider applying for our funding.
November 25, 2014, 6:13 AM
Comment by GREGORY MILIMO OKIYA,
Our request is that when will traditional herbal medicine researchers that cannot meet the requirements in merit status be considered us researchers, as most of your requirements to side of merit we don;t qualify yet we have medicine that can be a solution on these chronic and multiple chronic diseases world wide. We want you to come and prove our herbal medicine that we have before you start funding us to verify our claim.
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