Keeping Care Close to Home
Eva Powell, MSW, has spent her career as a hospital social worker and consumer advocate. Through these passions, she obtained a unique understanding of engaging others in the healthcare setting to address the social causes of health such as a patient’s housing, job, or neighborhood. When she started at the Alliance of Community Health Plans (ACHP), she and her team noticed a need by their members—nonprofit, community-based, provider-aligned health plans—for evidence-based mental health solutions they could feasibly implement.
Ensuring access to high-quality mental health care is a challenge for many health plans because of limited network providers and financial resources. To tackle this challenge, Powell and her team hosted webinars and a conference disseminating the findings of a previous PCORI-funded study via their new Engagement Award, Peer-Led Interventions to Expand Access to Care for Health Plan Members with SMI.
I’ve also seen, in front of my eyes, people who have significant mental illness get better—more functional—as a result of having a meaningful role in our coalition.
The mortality inequity for people with SMI is due in large part because they receive less preventative care and chronic condition management than others. For many people with SMI, difficulty building trust with traditional providers or simply getting to their offices can be a barrier to accessing care. “Most people would rather remain in their communities, or at least not have to travel a long distance for care,” Powell explained.
As such, Powell sought to extend the care team into the community by partnering with peer navigators—people with SMI, family members, caregivers, and others with lived experience—to build trust with patients and help them manage all their health needs, including navigating the complex healthcare system. “There seems to be acceptance on a number of levels that while the clinical setting is necessary for certain things, some things are better done closer to home,” Powell said.
Management of Mental Health Problems Among Gender Non-Conforming Youth
Michael Goodman, MD, MPH
Peer-Led Interventions to Expand Access to Care for Health Plan Members with Serious Mental Illness
Eva Powell, MSW
Alliance of Community Health Plans Foundation
Engaging Stakeholders to Promote Equity in Cancer Care for People with Serious Mental Illness
Kelly Irwin, MD, MPH
Massachusetts General Hospital
Equity through Engagement
Kelly Irwin, MD, MPH, a psychiatrist at the Massachusetts General Hospital Cancer Center, saw an urgent need unaddressed by the healthcare system. Social isolation, stigma, poverty, and systemically fragmented care all were contributing to significant cancer mortality rates among people with SMI.
Sometimes, disjointed communication between a patient’s oncologist and mental health specialist resulted in care that did not fully account for a patient’s medical and social needs, with overwhelming consequences for patients and providers alike.
“A cancer diagnosis is overwhelming for anyone, but if you’re also someone who has had bad experiences under the healthcare system, or has difficulty processing complex information, or doesn’t have an advocate, you can imagine that you might initially just feel overwhelmed and decline [care],” Irwin explained.
To develop and disseminate interventions, Irwin and her team built a coalition of patients, caregivers, oncologists, community mental health leaders, researchers, and policy makers through an Engagement Award—Engaging Stakeholders to Promote Equity in Cancer Care for People with Serious Mental Illness—committed to ensuring mental illness is not a barrier to receiving care that all people deserve. The resulting Cancer and Mental Health Collaborative fostered clinician consultation with patients and other clinicians and guided members on patient-centered research and appropriate care.
The project’s community stakeholder board comprised patient or caregiver co-led workgroups to engage members of diverse organizations. One such workgroup led arts initiatives, such as gathering patient selfies, to generate awareness and conversation. Another art installment was showcased at their Bridging the Divide symposium. This was one of many ways the project provided connectedness, purpose, and social support for patients. “It’s amazing the difference that can make,” Irwin said, “I’ve also seen, in front of my eyes, people who have significant mental illness get better—more functional—as a result of having a meaningful role in our coalition.”
Moving Forward Together
Bringing people together—whether it’s to work to find solutions, spread existing findings, or simply have a conversation—can have enormous mental health benefits. To learn more about any of these Engagement Awards, visit the links above. The more people that join and share these, or other mental health efforts, the greater the collective understanding of mental health will be. Ultimately, society will be stronger, more equitable, and healthier for it.