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To mark our fifth anniversary, we asked patients, caregivers, clinicians, and researchers to describe their experiences with engagement of healthcare stakeholders in research and share their thoughts about building a…

To mark our fifth anniversary, we asked patients, caregivers, clinicians, and researchers to describe their experiences with engagement of healthcare stakeholders in research and share their thoughts about building a…

October is Breast Cancer Awareness Month. During this annual campaign, organizations strive to increase awareness of the disease, encourage early detection, and increase support for research into its cause, prevention…

It’s hard to imagine that just five years ago, PCORI was little more than an ambitious vision to fund research on which healthcare options work best, under which circumstances, based…

Older adults make up an increasingly large proportion of the population in the United States. This is due in part to advances in care leading to longer life spans and…

One of our core beliefs at PCORI is that if studies look at outcomes important to patients and those who care for them, the results will help those stakeholders make…

Author(s): PCORI Staff In its September newsletter, the patient advocacy group Facing Our Risk of Cancer Empowered ( FORCE ) highlights its participation in ABOUT (American BRCA* Outcomes and Utilization…

Last month, there were tears of joy at my house when I learned of the Patient-Centered Outcome Research Institute’s (PCORI’s) award for a Patient-Powered Research Network (PPRN) focused on Alzheimer’s…

I’m pleased to tell you about a new audio report by iHealthBeat on the promise and challenges of using electronic health records (EHRs) for research. I was happy to participate…

Obesity is at epidemic levels in the United States. About 30 percent of American adults have obesity, with 5 percent having severe obesity. Among adolescents aged 12 to 19, 20…

Trust is central to the relationship between patients and their clinicians. It’s also essential to the relationship between patients and researchers if patients are to fully engage in clinical research…

As a learning organization, PCORI continuously strives to evaluate all aspects of our work to improve its reliability, efficiency, and value. The PCORI Evaluation Framework is an important part of…

PCORI has a broad charge: to fund research that improves the quality and relevance of evidence available to all healthcare stakeholders to help them make informed decisions. But such a…

When PCORI first proposed developing a national clinical research collaborative and community that would harness the power of partnerships and health data to improve patient outcomes, we knew we’d set…

Patients, caregivers, and their advocates provide invaluable contributions to activities both here at PCORI and in the studies we fund. In fact, we require that patients and other healthcare stakeholders…

As part of our mission to fund studies that will provide useful information to patients, caregivers, clinicians, and other healthcare stakeholders, we continually evaluate PCORI’s application process. So with the…

PCORI is committed to funding patient-centered comparative clinical effective research (CER) studies that engage patients, caregivers, clinicians, and other end users of healthcare information as partners throughout the entire research…

Each funding cycle, we at PCORI update our announcements to ensure we support projects that address critical research gaps. In this blog post, we address changes to the Cycle 2…

When people think about arthritis, most envision adults rather than children with this serious chronic illness. Yet about 300,000 children in the United States have long-term joint inflammation. During July…

I spent this past Friday and Saturday with folks at the biennial meeting of the Immune Deficiency Foundation (IDF) in New Orleans, which drew more than 1,300 patients and family…

To best achieve our goal of supporting comparative clinical effectiveness research (CER) that helps patients and those who care for them make better-informed healthcare decisions, we obtain input from various…

Editor's Note (March 3, 2023) Prior to July 2022, the PCORI Board of Governors was responsible for award approval. Now, the PCORI Executive Director is responsible for final review and…

Children's Day —celebrated the second Sunday of every June—is a time to mark our commitment to ensuring a healthy future for all the nation’s children. Approximately 74 million Americans, or…

There are almost 14 million cancer survivors in the United States. Nearly 1.7 million new cancers are diagnosed each year, and two-thirds of patients diagnosed with cancer survive for five…

We are sad to share the news that Seema Subash Sonnad, PhD, died on May 27. In 2013, Seema was appointed as one of the original members of the PCORI…