Blog

PCORI and the National Multiple Sclerosis Society Take On Vital Research Questions

Published: 
March 13, 2018
Author(s): 
Cat Stappas
Blog Topics: 
Research
Guest Blogs
Receiving a diagnosis of multiple sclerosis can be frightening. I know firsthand—I was diagnosed in 2013 shortly after I turned 29, and after experiencing symptoms such as numbness, tingling and vertigo. I learned I had lesions on my brain and spinal cord. When I found out I had MS, I felt lost,...
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The Latest Published Results from Our Funded Projects

Published: 
March 12, 2018
Author(s): 
Joe V. Selby, MD, MPH
Blog Topics: 
Research
Executive Director's Blog
When I last updated you on the latest scientific journal articles summarizing results of our funded studies, I told you how excited we were to see this fast-growing body of evidence that can help patients and those who care for them make better-informed healthcare decisions. I’m pleased to tell you...
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Changing the Landscape of Rare Disease Research

Published: 
February 28, 2018
Author(s): 
Vanessa Boulanger, MSc
Blog Topics: 
Engagement Blogs
Guest Blogs
A rare disease, by definition, affects fewer than 200,000 individuals in the United States. Up to 30 million Americans have a rare disease, and most conditions are poorly understood. The National Organization for Rare Disorders (NORD), the voice of the rare disease community, and PCORI are working...
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Introducing PCORI's Engagement in Health Research Literature Explorer

Published: 
February 20, 2018
Author(s): 
Laura Forsythe, PhD, MPH,
Kristin L. Carman, MA, PhD
Blog Topics: 
Research
Evaluating Our Work
What does engagement in research look like and what impact does it have? We can learn from peer-reviewed journal articles about the experiences researchers, patients, and other healthcare stakeholders have had engaging together on research projects. But these pieces are hard to find, because there...
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Refreshing the Engagement Awards Program

Published: 
February 12, 2018
Author(s): 
Lia Hotchkiss, MPH,
Ivey Wohlfeld
Blog Topics: 
Research
Engagement Blogs
Dissemination
Funding Awards
The Eugene Washington PCORI Engagement Awards program has awarded $48 million to fund more than 250 projects that build communities ready to engage in patient-centered outcomes research (PCOR) and comparative clinical effectiveness research (CER). We’re pleased with our program’s accomplishments...
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Patients Become Partners in PCORI Peer Review

Published: 
February 1, 2018
Author(s): 
Marina Broitman, PhD,
Kira Lesley,
Whitney McInvale, MPH,
Blog Topics: 
Research
Dissemination
Guest Blogs
Funding Awards
Peer review—independent assessment by recognized experts—is central to the research process, from deciding which study proposals to fund to evaluating articles for publication in scientific journals. At PCORI, our authorizing law requires the completed research we fund to undergo peer review, which...
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PCORI at Age Seven: Results That Matter, with Much More to Come

Published: 
January 23, 2018
Author(s): 
Joe V. Selby, MD, MPH
Blog Topics: 
Research
Executive Director's Blog
As we start a new year, I’d like to take a moment to share with you some of PCORI’s major accomplishments over the past 12 months and some of what we’re looking forward to in the months to come. I’m happy to say that we have a lot to be proud of, a lot to suggest that PCORI is meeting its mandate...
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Four Questions for Trent Haywood

Published: 
January 4, 2018
Author(s): 
Trent Haywood, MD, JD
Blog Topics: 
Research
Guest Blogs
The research that PCORI funds aims to help patients and those who care for them make better-informed decisions about real-world health and healthcare issues they face. Many of those decisions involve patients, their families, and their clinicians. But other stakeholders also must consider various...
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PCORI-Funded Projects Help Take on the Opioid Crisis

Published: 
December 22, 2017
Blog Topics: 
Research
More than 42,000 Americans died of opioid overdoses in 2016, a 28 percent increase from 2015. This death toll contributed to a decline in the overall life expectancy in the United States for the second year in a row, according to statistics released December 21 by the Centers for Disease Control...
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Researchers and Stakeholders Describe Engagement Challenges and Strategies

Published: 
December 15, 2017
Author(s): 
Andrea Heckert, PhD, MPH,
Lisa Stewart, MA
Blog Topics: 
Research
Engagement Blogs
When researchers partner with patients and other stakeholders in patient-centered research, the relationships can present challenges and opportunities for growth on both sides. PCORI hosted a webinar this month that addressed these challenges and presented strategies to help researchers and...
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