Blog

Drawing on Mental Health "Experts-by-Experience"

Published: 
June 7, 2016
Author(s): 
Andrew A. Nierenberg, MD,
Roberta Tovey, PhD
Topics: 
Research
Guest Blogs
An estimated 43.6 million American adults—nearly one in five—have mental illness. Anxiety and mood disorders, including depression, are the most common forms. While these conditions are usually treatable, clinicians often don’t have a good way to predict who will respond to which therapies, so...
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Working to Improve Cancer Care for Patients

Published: 
June 3, 2016
Author(s): 
Ellen Sigal, PhD
Topics: 
Research
PCORnet Blogs
Guest Blogs
Cancer, for so many, changes lives in a devastating way. Over 20 years ago, my sister lost her battle with cancer, leaving her family and children behind. Through mourning her, I became committed to doing anything I could to prevent another family from having to experience such a terrible loss...
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How Cancer Survivors Make a Difference at PCORI

Published: 
June 2, 2016
Author(s): 
Neeraj Arora, PhD,
Michelle Johnston-Fleece , MPH
Topics: 
Research
PCORnet Blogs
In typical cancer studies, patients who wish to lend a hand are limited to being research participants. But at PCORI, we pride ourselves on research done differently. Patients are partners, involved every step of the way from choosing research topics to being members of research teams to...
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New Pipeline to Proposal Funding Opportunity Available to Research Partnerships

Published: 
May 26, 2016
Author(s): 
Courtney Clyatt, MA, MPH,
Topics: 
Research
Engagement Blogs
Today, PCORI is launching a new funding announcement under the Pipeline to Proposal (P2P) funding initiative. Unlike previous P2P opportunities, the Independent Tier III funding mechanism targets already-established partnerships of researchers and patients that need support to develop an...
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Recognizing Our Research Partners

Published: 
May 18, 2016
Author(s): 
Suzanne Schrandt, JD,
Topics: 
Research
Engagement Blogs
Funding Awards
As a funder of patient-centered outcomes research, we at PCORI always look for ways to note how vital our patient and other stakeholder communities are to our work. We’ve been fortunate to have gained valuable insights from many individuals in these communities as we develop ways to ensure...
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Placing Arthritis Research in Patients' Hands

Published: 
May 17, 2016
Author(s): 
W. Benjamin "Ben" Nowell, PhD,
Kelly Clayton
Topics: 
Research
Guest Blogs
Arthritis is one of the most common chronic diseases in the United States. One-fifth of American adults, and half of those 65 years or older, report having a diagnosis of arthritis. About a third of those with arthritis report that it limits their activities. To mark this Arthritis Awareness Month...
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Tell Us Your Story: You Could Help Shape Research on Heart and Vascular Disease

Published: 
May 11, 2016
Author(s): 
Joe V. Selby, MD, MPH
Topics: 
Research
Executive Director's Blog
“Patient-centered” are the first two words in PCORI’s name. And what better way to see that the research we fund focuses on patients’ experiences, concerns, and outcomes they care about than to ask patients themselves to tell us about those issues. So, as we first announced a few weeks back , we’re...
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Taking the Confusion out of Breast Cancer Screening

Published: 
May 6, 2016
Author(s): 
Laura Esserman, MD, MBA,
Diane Heditsian
Topics: 
Research
Guest Blogs
At its core, screening for breast cancer aims to save lives. The idea is intuitively attractive: Find a tumor early, before the disease becomes more serious, and some combination of surgery, radiation, chemotherapy, and hormone therapy can reduce a woman’s chance of dying from breast cancer. But it...
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The Keys to Treating Arthritis Lie in Patient Experiences

Published: 
May 2, 2016
Author(s): 
Terry Summerlin, MA
I was diagnosed with rheumatoid arthritis when I was 16, which was 43 years ago. It was a very rough road in the early years. I had so much pain in my hips, I sometimes couldn’t walk. I missed 45 days of school in the 11th grade. Then I had over 20 operations to repair, replace, or fuse my joints...
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TIME Magazine Recognizes Two PCORI Awardees

Published: 
April 26, 2016
Author(s): 
Joe V. Selby, MD, MPH
Topics: 
Research
Executive Director's Blog
Among all of the many lists of influential people, TIME magazine’s annual selection is at the top. This year we are thrilled that TIME named two PCORI awardees as among the 100 most influential people in the world. So I thought I’d take a moment to celebrate their accomplishment. Laura Esserman, MD...
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