Introduction to Patient Reported Outcomes (PROs)

This document created by the National Organization for Rare Disorders and the University of Maryland provides pre-training assignments and reading materials for an introduction to a patient-reported outcomes (PROs) training teleconference. The document could stand alone as a self-study introduction to PROs for patient partners or other stakeholders learning about PROs. It outlines the objectives, reading materials, activities, and glossary of terms for an associated teleconference. The document could serve as a template for others interested in creating training materials for patients.

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