PCOR for Rare Disease Resource List

Created by the National Organization for Rare Disorders and the University of Maryland, this document provides a list of resources for patient advocates in rare disease for further reading, training, or outreach. It can used by other teams interested in providing resources for patients and can also serve as a template for others.

Disclaimer: This tool was developed and provided by a third party. Opinions and information in this content are those of the third party and do not necessarily represent the views of PCORI. Accordingly, PCORI cannot make any guarantees with respect to the accuracy or reliability of the information and data in this content.