Ambassador Center
Displaying 1 - 25 of 83 results
Ambassador
Stakeholder Type
Health Conditions of Interest
Kimberly K. Haugstad
Wisconsin
Stakeholder Type:
Caregivers,
Patients
Health Conditions of Interest:
Rare Diseases,
Blood Disorders,
Genetic Disorders
Ella Balasa
Virginia
Stakeholder Type:
Caregivers,
Patients
Health Conditions of Interest:
Rare Diseases,
Infectious Diseases,
Respiratory Diseases
Tara Hastings
New Jersey
Stakeholder Type:
Health Conditions of Interest:
Rare Diseases,
Neurological Disorders,
Ear, Nose, and Throat Diseases
Daniel Bennett
Maryland
Stakeholder Type:
Health Conditions of Interest:
Muscular and Skeletal Disorders,
Rare Diseases,
Cancer
Deanna N. Fournier
New Jersey
Stakeholder Type:
Caregivers,
Patients
Health Conditions of Interest:
Multiple/Comorbid Chronic Conditions,
Rare Diseases,
Cancer,
Blood Disorders,
Genetic Disorders
Jennifer Malinowski
New Jersey
Stakeholder Type:
Industry
Health Conditions of Interest:
Multiple/Comorbid Chronic Conditions,
Rare Diseases,
Other or Non-Disease Specific
Rosslyn Bitjonck
Texas
Stakeholder Type:
Industry
Health Conditions of Interest:
Rare Diseases,
Infectious Diseases
Sadegh Alikhaani
California
Stakeholder Type:
Caregivers,
Patients
Health Conditions of Interest:
Eye Diseases,
Multiple/Comorbid Chronic Conditions,
Muscular and Skeletal Disorders,
Rare Diseases,
Neurological Disorders,
Cardiovascular Diseases
Nathan Peck
Georgia
Stakeholder Type:
Caregivers,
Patients
Health Conditions of Interest:
Muscular and Skeletal Disorders,
Rare Diseases,
Neurological Disorders
Allison Peck
Georgia
Stakeholder Type:
Caregivers,
Patients
Health Conditions of Interest:
Muscular and Skeletal Disorders,
Rare Diseases,
Neurological Disorders
Amy Casey
Iowa
Stakeholder Type:
Caregivers,
Patients
Health Conditions of Interest:
Mental/Behavioral Health,
Rare Diseases,
Genetic Disorders
Sky Collins
Oklahoma
Stakeholder Type:
Caregivers,
Patients
Health Conditions of Interest:
Muscular and Skeletal Disorders,
Rare Diseases,
Genetic Disorders
Juliana Shank
Hawaii
Stakeholder Type:
Policymakers
Health Conditions of Interest:
Mental/Behavioral Health,
Rare Diseases,
Reproductive and Perinatal Health
Nneka Onwudiwe
Maryland
Stakeholder Type:
Industry
Health Conditions of Interest:
Rare Diseases,
Cancer,
Skin Diseases
Dj Lamb
Missouri
Stakeholder Type:
Health Conditions of Interest:
Mental/Behavioral Health,
Rare Diseases,
Nutritional and Metabolic Disorders,
Blood Disorders,
Cardiovascular Diseases,
Infectious Diseases,
Skin Diseases,
Toxins,
Trauma/Injuries
Mary Akhtar
California
Stakeholder Type:
Health Conditions of Interest:
Allergies and Immune Disorders,
Multiple/Comorbid Chronic Conditions,
Mental/Behavioral Health,
Rare Diseases,
Infectious Diseases,
Functional Limitations and Disabilities
Armelle Pindon
New York
Stakeholder Type:
Health Conditions of Interest:
Rare Diseases,
Neurological Disorders,
Genetic Disorders
Andrea Taylor
Oklahoma
Stakeholder Type:
Health Conditions of Interest:
Eye Diseases,
Rare Diseases,
Genetic Disorders
Madison Snider
Texas
Stakeholder Type:
Health Conditions of Interest:
Allergies and Immune Disorders,
Multiple/Comorbid Chronic Conditions,
Rare Diseases,
Genetic Disorders
Ilene Hollin
Pennsylvania
Stakeholder Type:
Researcher
Health Conditions of Interest:
Muscular and Skeletal Disorders,
Rare Diseases,
Respiratory Diseases
Courtney Berrios
Missouri
Stakeholder Type:
Researcher
Health Conditions of Interest:
Rare Diseases,
Birth and Developmental Disorders,
Genetic Disorders
Mindy Cameron
Indiana
Stakeholder Type:
Health Conditions of Interest:
Muscular and Skeletal Disorders,
Rare Diseases,
Genetic Disorders
Jacqueline Baker
New York
Stakeholder Type:
Health Conditions of Interest:
Rare Diseases,
Blood Disorders,
Genetic Disorders
Joyce Trost
Minnesota
Stakeholder Type:
Researcher
Health Conditions of Interest:
Multiple/Comorbid Chronic Conditions,
Muscular and Skeletal Disorders,
Rare Diseases,
Neurological Disorders,
Genetic Disorders,
Functional Limitations and Disabilities
