Engagement Award Program: Recently Funded Projects
To date, we have awarded approximately $170.7 million to support 829 projects advancing patient-centered comparative clinical effectiveness research (CER) through the Eugene Washington PCORI Engagement Award program, including:
- An initiative led by Accelerated Cure Project for Multiple Sclerosis to convene youth diagnosed with multiple sclerosis (MS), parents, researchers and funders to collaborate on cocreating a multi-stakeholder research agenda for patient-centered CER in pediatric MS and yield a repeatable process for future collaborative efforts to advance patient-centered CER and the development of MS research agendas in other topic areas.
- A project led by Utah State University to engage a diverse group of stakeholders in the intellectual and developmental disabilities (IDD) community (caregivers, healthcare providers and researchers) and develop patient-centered CER priorities and questions that address barriers to long-term IDD behavioral health outcomes. In building this capacity, researchers will be positioned to conduct patient-centered CER that examines a more complete range of factors that impact health outcomes and identify how clinical practices can be varied to improve long-term health outcomes for individuals with IDD.
- An endeavor led by Glut1 Deficiency Foundation to build on the project team’s past PCORI-funded project on adult experiences in Glut1 Deficiency and broaden that focus and scope to more stakeholder groups to create a framework for ongoing assessment of patient-centered CER priorities and needs, fill gaps, develop a model program and practical strategies to educate and engage the community on the importance of patient-centered CER, build relationships, and ensure patient voices are centered in and directing the research process.
View all PCORI-Funded Engagement Awards
Engagement Award Projects Engagement Award Conference Projects
Posted: February 2015; Last updated: March 2024