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Young K, Kaminstein D, Olivos A, Burroughs C, Castillo-Lee C, Kullman J, McAlear C, Shaw DG, Sreih A, Casey G; Vasculitis Patient-Powered Research Network, Merkel PA. Patient involvement in medical research: what patients and physicians learn from each other. Orphanet J Rare Dis. 2019 Jan 24;14(1):21. doi:10.1186/s13023-018-0969-1. PubMed PMID: 30678705

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