Patient involvement in rare diseases research: a scoping review of the literature and mixed method evaluation of Norwegian researchers' experiences and perceptions

Orphanet Journal of Rare Diseases
June 2022
View Journal Publication

Disclaimer: Publications may either be freely available or require a fee to view (or access) on the journal’s website.

Full Citation

Velvin, G., Hartman, T., Bathen, T.. Patient involvement in rare diseases research: a scoping review of the literature and mixed method evaluation of Norwegian researchers' experiences and perceptions. Orphanet J Rare Dis. 2022. 17(1): 212. DOI:10.1186/s13023-022-02357-y.PMID:35642001

Tags

Journal Article Topics
Journal Publication Name
Literature Type
Stakeholder Types