Social Impact Identified in and by the Alpha-1 Antitrypsin Deficiency Community
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Full Citation
Strange C, Wienke S, Walker D, Sineath M, Quill J, Warner B, Shote L, Flavin S, Williams P. Social Impact Identified in and by the Alpha-1 Antitrypsin Deficiency Community. Rare Diseases and Orphan Drug. 2014 Jul;1(3): 75-82.
Tags
Journal Article Type
- Paper Resulting From PCORI-Funded Research Study (with results)
- Other Results
Journal Article Topics
- Example of Engagement in Health Research
Journal Publication Name
- Rare Diseases and Orphan Drugs Journal
Literature Type
- Engagement
- PCORI Research
Research Phases
- Participant Recruitment/Retention
- Data Collection
- Results Review/Analysis
- Translation
Stakeholder Types
- Clinicians
- Patients
- Caregivers
- Learning Institutions