Engagement in Health Research Literature Explorer

Finding literature on engagement in health research can be challenging, because there are no standard search terms or language for describing what engagement means in this context. So, PCORI staff members have put together a searchable list of publications on engagement in health research, selected through a process described here.

This resource is sortable by article topic type, types of stakeholders engaged, and phase(s) of research in which engagement occurred, from identifying research questions to sharing study results. Articles are listed if they met our search and inclusion criteria.

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Displaying 1 - 10 of 14 results
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Journal of Health Care for the Poor and Underserved

Network analysis of an organizational collaboration for Pacific Islander cancer control.

Tanjasiri SP, Tran JH, Palmer PH, Valente TW
Pacific Health Dialog

Developing a community-based collaboration to reduce cancer health disparities among Pacific Islanders in California.

Tanjasiri S, Tran J, Palmer P, et al
Progress In Community Health Partnerships

Fit for life steps: results of a community walking intervention in the rural Mississippi delta

Zoellner J, Connell CL, Santell R, Fungwe T, Strickland E, Avis-Williams A, Yadrick K, Lofton K, Rowser M, Powers A, Lucas G, Bogle ML.
Patient Education and Counseling

A review of literature about involving people affected by cancer in research, policy and planning and practice

Hubbard G, Kidd L, Donaghy E, McDonald C, Kearney N
Health Promotion Practice

Drawing from Freirian empowerment methods to develop and use innovative learning maps: increasing enrollment of uninsured children on Detroit's eastside.

Lopez ED, Lichtenstein R, Lewis A, et al.
Health Expectations

User involvement in the development of a research bid: barriers, enablers and impacts

Staniszewska S, Jones N, Newburn M, Marshall S
Preventing Chronic Disease

Community-based participatory research: necessary next steps

Faridi Z, Grunbaum JA, Sajor Grey B, Franks A, Simoes E.
Australia and New Zealand Health Policy

Operationalising a model framework for consumer and community participation in health and medical research.

Saunders C, Crossing S, Girgis A, Butow P, Penman A
American Indian and Alaska Native Mental Health Research

Disseminating research on community health and well-being: a collaboration between Alaska Native villages and the academe.

Legaspi A, Orr E
Health Expectations

Assessment of the benefits of user involvement in health research from the Warwick Diabetes Care Research User Group: a qualitative case study

Lindenmeyer A, Hearnshaw H, Sturt J, Ormerod R, Aitchison G