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PCORI

Patient-Centered Outcomes Research Institute

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    Fact Sheets: Learn More About PCORI

    Download fact sheets about out work, the research we fund, and our programs and initiatives.

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    Featured Topic: Women's Health

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    Engagement

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    Engagement Tools and Resources for Research

    This searchable peer-to-peer repository includes resources that can inform future work in patient-centered outcomes research.

    Explore Engagement in Health Literature

    This tool enables searching for published articles about engagement in health research.

    Research Fundamentals: A New On-Demand Training

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    PCORI Funding Opportunities

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    Meetings & Events

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    January 2021 Board of Governors Meeting

    The Board approved funding for a new research study relating to kidney health and a new funding allocation for PCORnet. Learn more

    Confronting COVID-19: A Webinar Series

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    2020 PCORI Annual Meeting

    Watch recordings of all sessions, and view titles and descriptions of the posters presented at the virtual meeting.

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  • Engagement
  • Engagement in Health Research Literat...

Engagement in Health Research Literature Explorer

Finding literature on engagement in health research can be challenging, because there are no standard search terms or language for describing what engagement means in this context. So, PCORI staff members have put together a searchable list of publications on engagement in health research, selected through a process described here.

This resource is sortable by article topic type, types of stakeholders engaged, and phase(s) of research in which engagement occurred, from identifying research questions to sharing study results. Articles are listed if they met our search and inclusion criteria.

Download a List of These Journal Citations

Browse Citations

Displaying 1 - 10 of 12 results
Example of Engagement in Health ResearchReset All Filters
 
Breast (Edinburgh, Scotland)

Evaluation of existing patient educational materials and development of a brochure for women with dense breasts

Warner ET, Kennedy M, Maschke A, Hopkins MF, Wernli K, Gunn CM
British journal of sports medicine

High intensity exercise for 3 months reduces disease activity in axial spondyloarthritis (axSpA): a multicentre randomised trial of 100 patients

Sveaas SH, Bilberg A, Berg IJ, Provan SA, Rollefstad S, Semb AG, Hagen KB, Johansen MW, Pedersen E, Dagfinrud H
Nutrients

Parent and Provider Perspectives on the Imprecise Label of "Human Milk Fortifier" in the NICU

Canvasser J, Hair AB, Kim JH, Taylor SN
Journal of the American Geriatrics Society

Empowering Older Adults to Discuss Advance Care Planning During Clinical Visits: The PREPARE Randomized Trial

Freytag J, Street RL Jr, Barnes DE, Shi Y, Volow AM, Shim JK, Alexander SC, Sudore RL
American Journal Of Clinical Pathology

Cost of Unnecessary Amylase and Lipase Testing at Multiple Academic Health Systems

Ritter JP, Ghirimoldi FM, Manuel LSM, Moffett EE, Novicki TJ, McClay JC, Shireman PK, Brimhall BB
Annals of Palliative Medicine

Optimizing future planning in Parkinson disease: suggestions for a comprehensive roadmap from patients and care partners

Jordan SR, Kluger B, Ayele R, Brungardt A, Hall A, Jones J, Katz M, Miyasaki JM, Lum HD
The journal of Behavioral Health Services & Research

Behavioral Health Integration and Outcomes that Matter to Patients: a Longitudinal Mixed-Methods Observational Study

Wright B, Broffman L, McMenamin KA, Jones K, Weller M, Brown K, Jacobson L, Bouranis N, Kenton NR
Journal of The National Comprehensive Cancer Network

Randomized Trial of a Smartphone Mobile App to Improve Symptoms and Adherence to Oral Therapy for Cancer

Greer JA, Jacobs JM, Pensak N, Nisotel LE, Fishbein JN, MacDonald JJ, Ream ME, Walsh EA, Buzaglo J, Muzikansky A, Lennes IT, Safren SA, Pirl WF, Temel JS
Substance Abuse

Characterization of substance use among underrepresented sexual and gender minority participants in The Population Research in Identity and Disparities for Equality (PRIDE) Study

Barger BT, Obedin-Maliver J, Capriotti MR, Lunn MR, Flentje A
Academic emergency medicine: official journal of the Society for Academic Emergency Medicine

Shared Decision Making in Patients With Suspected Uncomplicated Ureterolithiasis: A Decision Aid Development Study

Schoenfeld EM, Houghton C, Patel PM, Merwin LW, Poronsky KP, Caroll AL, Sánchez Santana C, Breslin M, Scales CD, Lindenauer PK, Mazor KM, Hess EP

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Meetings & Events

January 21
Cycle 1 2021 Broad PFA Applicant Town Hall
February 2
PCORI 2021 and Beyond: Opportunities for Funding and Involvement in Patient-Centered Research
February 9
Board of Governors Meeting: February 9, 2021

PCORI

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Patient-Centered Outcomes
Research Institute

1828 L Street, NW, Suite 900
Washington, DC 20036
Phone: (202) 827-7700 | Fax: (202) 355-9558
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