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Patient-Centered Outcomes Research Institute

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    Fact Sheets: Learn More About PCORI

    Download fact sheets about out work, the research we fund, and our programs and initiatives.

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    Evidence Updates from PCORI-Funded Studies

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    Featured Topic: Women's Health

    Learn more about the projects we support on conditions that specifically or more often affect women.

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    Engagement

    • The Value of Engagement
    • Engagement in Health Research Literature Explorer
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    Engagement Tools and Resources for Research

    This searchable peer-to-peer repository includes resources that can inform future work in patient-centered outcomes research.

    Explore Engagement in Health Literature

    This tool enables searching for published articles about engagement in health research.

    Research Fundamentals: A New On-Demand Training

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    PCORI Funding Opportunities

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    Meetings & Events

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    January 2021 Board of Governors Meeting

    The Board approved funding for a new research study relating to kidney health and a new funding allocation for PCORnet. Learn more

    Confronting COVID-19: A Webinar Series

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    2020 PCORI Annual Meeting

    Watch recordings of all sessions, and view titles and descriptions of the posters presented at the virtual meeting.

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  • Engagement
  • Engagement in Health Research Literat...

Engagement in Health Research Literature Explorer

Finding literature on engagement in health research can be challenging, because there are no standard search terms or language for describing what engagement means in this context. So, PCORI staff members have put together a searchable list of publications on engagement in health research, selected through a process described here.

This resource is sortable by article topic type, types of stakeholders engaged, and phase(s) of research in which engagement occurred, from identifying research questions to sharing study results. Articles are listed if they met our search and inclusion criteria.

Download a List of These Journal Citations

Browse Citations

Displaying 1 - 10 of 203 results
Data CollectionStudy OutcomesReset All Filters
 
Research Involvement and Engagement

Public involvement in health research: what does ‘good’ look like in practice?

Liabo K, Boddy K, Bortoli S, Irvine J, Boult H, Fredlund M, Joseph N, Bjornstad G, Morris C
JAMA Cardiology

Rationale and Design of the Aspirin Dosing-A Patient-Centric Trial Assessing Benefits and Long-term Effectiveness (ADAPTABLE) Trial

Marquis-Gravel G, Roe MT, Robertson HR, Harrington RA, Pencina MJ, Berdan LG, Hammill BG, Faulkner M, Muñoz D, Fonarow GC, Nallamothu BK, Fintel DJ, Ford DE, Zhou L, Daugherty SE, Nauman E, Kraschnewski J, Ahmad FS, Benziger CP, Haynes K, Merritt JG, Metkus T, Kripalani S, Gupta K, Shah RC, McClay JC, Re RN, Geary C, Lampert BC, Bradley SM, Jain SK, Seifein H, Whittle J, Roger VL, Effron MB, Alvarado G, Goldberg YH, VanWormer JL, Girotra S, Farrehi P, McTigue KM, Rothman R, Hernandez AF, Jones WS
Academic emergency medicine: official journal of the Society for Academic Emergency Medicine

Shared Decision Making in Patients With Suspected Uncomplicated Ureterolithiasis: A Decision Aid Development Study

Schoenfeld EM, Houghton C, Patel PM, Merwin LW, Poronsky KP, Caroll AL, Sánchez Santana C, Breslin M, Scales CD, Lindenauer PK, Mazor KM, Hess EP
Journal of Vascular Surgery

Setting a research agenda for vascular Ehlers-Danlos syndrome using a patient and stakeholder engagement model

Sage L, Russo ML, Byers PH, Demasi J, Morris SA, Puryear LN, Fulton DS, Shalhub S; Vascular Ehlers-Danlos Syndrome Research Collaborative
Journal of Patient-Reported Outcomes

An emerging framework for fully incorporating public involvement (PI) into patient-reported outcome measures (PROMs)

Carlton J, Peasgood T, Khan S, Barber R, Bostock J, Keetharuth AD
The Gerontologist

Preparation and Planning for Future Care in the Deep South: Adapting a Validated Tool for Cultural Sensitivity

Allen RS, Oliver JS, Eichorst MK, Mieskowski L, Payne-Foster P, Sörensen S
Research Involvement and Engagement

Use of Photovoice to engage stakeholders in planning for patient-centered outcomes research

Nault Connors JD, Conley MJ, Lorenz LS
Health Expectations

What motivates patients and caregivers to engage in health research and how engagement affects their lives: Qualitative survey findings

Hemphill R, Forsythe LP, Heckert AL, Amolegbe A, Maurer M, Carman KL, Mangrum R, Stewart L, Fearon N, Esmail L.
Journal of Clinical Epidemiology

A benefit-harm analysis of adding basal insulin vs. sulfonylurea to metformin to manage type II diabetes mellitus in people with multiple chronic conditions

Bennett WL, Aschmann HE, Puhan MA, Robbins CW, Bayliss EA, Wilson R, Mularski RA, Chan WV, Leff B, Sheehan O, Glover C, Maslow K, Armacost K, Mintz S, Boyd CM
Journal of Palliative Medicine

Protocol for a Noninferiority Comparative Effectiveness Trial of Home-Based Palliative Care (HomePal)

Nguyen HQ, Mularski RA, Edwards PE, Lynn J, Machado MT, McBurnie MA, McMullen C, Mittman BS, Reinke LR, Shen E, Wang SE, Werch HS

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Topic

  • Example of Engagement in Health Research (84) Apply Example of Engagement in Health Research filter
  • Detailed Description of Engagement in Health Research (75) Apply Detailed Description of Engagement in Health Research filter
  • Evidence for Engagement (35) Apply Evidence for Engagement filter
  • Editorial/Commentary (8) Apply Editorial/Commentary filter
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Stakeholder Involvement

  • Patients (140) Apply Patients filter
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  • Hospitals/Health Systems (63) Apply Hospitals/Health Systems filter
  • Caregivers (62) Apply Caregivers filter
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Phases of Research Engagement

  • (-) Remove Data Collection filter Data Collection
  • (-) Remove Study Outcomes filter Study Outcomes
  • Participant Recruitment/Retention (130) Apply Participant Recruitment/Retention filter
  • Results Review/Analysis (125) Apply Results Review/Analysis filter
  • Research Questions/Aims (110) Apply Research Questions/Aims filter
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About Us

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Research & Results

  • Explore Our Portfolio
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  • Putting Evidence to Work
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Engagement

  • The Value of Engagement
  • Engagement in Health Research Literature Explorer
  • Influencing the Culture of Research
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  • Engage with Us

Funding Opportunities

  • What & Who We Fund
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  • Help Center

Meetings & Events

January 21
Cycle 1 2021 Broad PFA Applicant Town Hall
February 2
PCORI 2021 and Beyond: Opportunities for Funding and Involvement in Patient-Centered Research
February 9
Board of Governors Meeting: February 9, 2021

PCORI

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Patient-Centered Outcomes
Research Institute

1828 L Street, NW, Suite 900
Washington, DC 20036
Phone: (202) 827-7700 | Fax: (202) 355-9558
[email protected]

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