Engagement in Health Research Literature Explorer

Finding literature on engagement in health research can be challenging, because there are no standard search terms or language for describing what engagement means in this context. So, PCORI staff members have put together a searchable list of publications on engagement in health research, selected through a process described here.

This resource is sortable by article topic type, types of stakeholders engaged, and phase(s) of research in which engagement occurred, from identifying research questions to sharing study results. Articles are listed if they met our search and inclusion criteria.

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Displaying 1 - 10 of 197 results
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Research Involvement and Engagement

Public involvement in health research: what does ‘good’ look like in practice?

Liabo K, Boddy K, Bortoli S, Irvine J, Boult H, Fredlund M, Joseph N, Bjornstad G, Morris C
JAMA Cardiology

Rationale and Design of the Aspirin Dosing-A Patient-Centric Trial Assessing Benefits and Long-term Effectiveness (ADAPTABLE) Trial

Marquis-Gravel G, Roe MT, Robertson HR, Harrington RA, Pencina MJ, Berdan LG, Hammill BG, Faulkner M, Muñoz D, Fonarow GC, Nallamothu BK, Fintel DJ, Ford DE, Zhou L, Daugherty SE, Nauman E, Kraschnewski J, Ahmad FS, Benziger CP, Haynes K, Merritt JG, Metkus T, Kripalani S, Gupta K, Shah RC, McClay JC, Re RN, Geary C, Lampert BC, Bradley SM, Jain SK, Seifein H, Whittle J, Roger VL, Effron MB, Alvarado G, Goldberg YH, VanWormer JL, Girotra S, Farrehi P, McTigue KM, Rothman R, Hernandez AF, Jones WS
Journal of Vascular Surgery

Setting a research agenda for vascular Ehlers-Danlos syndrome using a patient and stakeholder engagement model

Sage L, Russo ML, Byers PH, Demasi J, Morris SA, Puryear LN, Fulton DS, Shalhub S; Vascular Ehlers-Danlos Syndrome Research Collaborative
Academic emergency medicine: official journal of the Society for Academic Emergency Medicine

Shared Decision Making in Patients With Suspected Uncomplicated Ureterolithiasis: A Decision Aid Development Study

Schoenfeld EM, Houghton C, Patel PM, Merwin LW, Poronsky KP, Caroll AL, Sánchez Santana C, Breslin M, Scales CD, Lindenauer PK, Mazor KM, Hess EP
Journal of Patient-Reported Outcomes

An emerging framework for fully incorporating public involvement (PI) into patient-reported outcome measures (PROMs)

Carlton J, Peasgood T, Khan S, Barber R, Bostock J, Keetharuth AD
The Gerontologist

Preparation and Planning for Future Care in the Deep South: Adapting a Validated Tool for Cultural Sensitivity

Allen RS, Oliver JS, Eichorst MK, Mieskowski L, Payne-Foster P, Sörensen S
Research Involvement and Engagement

Use of Photovoice to engage stakeholders in planning for patient-centered outcomes research

Nault Connors JD, Conley MJ, Lorenz LS
Health Expectations

What motivates patients and caregivers to engage in health research and how engagement affects their lives: Qualitative survey findings

Hemphill R, Forsythe LP, Heckert AL, Amolegbe A, Maurer M, Carman KL, Mangrum R, Stewart L, Fearon N, Esmail L.
Journal of Clinical Epidemiology

A benefit-harm analysis of adding basal insulin vs. sulfonylurea to metformin to manage type II diabetes mellitus in people with multiple chronic conditions

Bennett WL, Aschmann HE, Puhan MA, Robbins CW, Bayliss EA, Wilson R, Mularski RA, Chan WV, Leff B, Sheehan O, Glover C, Maslow K, Armacost K, Mintz S, Boyd CM
BMJ Open

Ambulatory cancer care electronic symptom self-reporting (ACCESS) for surgical patients: a randomised controlled trial protocol

Stabile C, Temple LK, Ancker JS, Basch E, Carter J, Miranda M, Stein D, Stetson PD, Vickers A, Simon BA, Pusic AL