Engagement in Health Research Literature Explorer

Finding literature on engagement in health research can be challenging, because there are no standard search terms or language for describing what engagement means in this context. So, PCORI staff members have put together a searchable list of publications on engagement in health research, selected through a process described here.

This resource is sortable by article topic type, types of stakeholders engaged, and phase(s) of research in which engagement occurred, from identifying research questions to sharing study results. Articles are listed if they met our search and inclusion criteria.

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Displaying 1 - 10 of 44 results
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Archives of Physical Medicine and Rehabilitation

Contextualized Treatment in Traumatic Brain Injury Inpatient Rehabilitation: Effects on Outcomes During the First Year after Discharge

Bogner J, Dijkers M, Hade EM, Beaulieu C, Montgomery E, Giuffrida C, Timpson M, Peng J, Gilchrist K, Lash A, Hammond FM, Horn S, Corrigan J
Progress In Community Health Partnerships

Baltimore CONNECT: A Randomized Trial to Build Partnership Between Community Organizations and a Local Health System

Wu AW, Hwang S, Weston CM, Ibe C, Boonyasai RT, Bone L, Basu L, Lief I, Gentry J, Purnell L, Rosenblum M; Baltimore CONNECT Study Team
Transgender Health

Highest Priority Health and Health Care Concerns of Transgender and Nonbinary Individuals in a Southern State

Marshall SA, Allison MK, Stewart MK, Thompson ND, Archie DS
Research Involvement and Engagement

Fostering the conduct of ethical and equitable research practices: the imperative for integrated knowledge translation in research conducted by and with indigenous community members

Jull J, Morton-Ninomiya M, Compton I, Picard A.
Research Involvement and Engagement

Coproduction for feasibility and pilot randomised controlled trials: learning outcomes for community partners, service users and the research team

McConnell T, Best P, Davidson G, McEneaney T, Cantrell C, Tully M.
Annals of the American Thoracic Society

Patient-centered Outcomes Research in Pulmonary, Critical Care, and Sleep Medicine

Feemster LC, Saft HL, Bartlett SJ, Parthasarathy S, Barnes T, Calverley P, Curtis JR, Hickam DH, Mularski RA, Au DH, Chlan LL, Reinke LF, Cooke CR, Cox CE, Krishnan JA, Rubin E, Shah S, Sullivan DR, Kross EK; American Thoracic Society Behavioral Sciences and Health Services Research Assembly and Nursing Assembly
Medical Care

MoodNetwork: An Innovative Approach to Patient-centered Research

Sylvia LG, Hearing CM, Montana RE, Gold AK, Walsh SL, Janos JA, Tovey RE, Deckersbach T, Nierenberg AA
Research Involvement and Engagement

The prevalence of patient engagement in published trials: a systematic review

Fergusson D, Monfaredi Z, Pussegoda K, Garritty C, Lyddiatt A, Shea B, Duffett L, Ghannad M, Montroy J, Hassan Murad M, Pratt M, Rader T, Shorr R, Yazdi F.
Medicine

Design of a comparative effectiveness randomized controlled trial testing a faith-based Diabetes Prevention Program (WORD DPP) vs. a Pacific culturally adapted Diabetes Prevention Program (PILI DPP) for Marshallese in the United States

McElfish PA, Long CR, Kaholokula JK, Aitaoto N, Bursac Z, Capelle L, Laelan M, Bing WI, Riklon S, Rowland B, Ayers BL, Wilmoth RO, Langston KN, Schootman M, Selig JP, Yeary KHK
JMIR mHealth and uHealth

Patient and Family Engagement in the Design of a Mobile Health Solution for Pediatric Asthma: Development and Feasibility Study

McWilliams A, Reeves K, Shade L, Burton E, Tapp H, Courtlandt C, Gunter A, Dulin MF