Finding literature on engagement in health research can be challenging, because there are no standard search terms or language for describing what engagement means in this context. So, PCORI staff members have put together a searchable list of publications on engagement in health research, selected through a process described here.

This resource is sortable by article topic type, types of stakeholders engaged, and phase(s) of research in which engagement occurred, from identifying research questions to sharing study results. Articles are listed if they met our search and inclusion criteria.

We’ve recently added a new topic filter to help you search for articles related to measuring and evaluating engagement. Refine your results by Article Topic: Measurement to see a limited collection of publications about existing measures and insights related to evaluating engagement.

The Engagement in Health Research Literature Explorer is currently updated with articles sourced through January 4, 2023. You can download a spreadsheet of included citations here. We are in the process of reviewing and adding more recent articles. If you have questions about the additional articles currently under review for inclusion in our resource, please contact us at [email protected].