Engagement in Health Research Literature Explorer

Finding literature on engagement in health research can be challenging, because there are no standard search terms or language for describing what engagement means in this context. So, PCORI staff members have put together a searchable list of publications on engagement in health research, selected through a process described here.

This resource is sortable by article topic type, types of stakeholders engaged, and phase(s) of research in which engagement occurred, from identifying research questions to sharing study results. Articles are listed if they met our search and inclusion criteria.

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Displaying 11 - 20 of 1639 results
 
Contemporary Clinical Trials

Clinical trial testing in-home multidisciplinary care management for older adults with cognitive vulnerability: Rationale and study design

Fortinsky RH, Kuchel GA, Steffens DC, Grady J, Smith M, Robison JT
Value In Health

Informing Patient-Centered Care Through Stakeholder Engagement and Highly Stratified Quantitative Benefit–Harm Assessments

Aschmann HE, Boyd CM, Robbins CW, Chan WV, Mularski RA, Bennett WL, Sheehan OC, Wilson RF, Bayliss EA, Leff B, Armacost K, Glover C, Maslow K, Mintz S, Puhan MA
Journal of the American Geriatrics Society

Empowering Older Adults to Discuss Advance Care Planning During Clinical Visits: The PREPARE Randomized Trial

Freytag J, Street RL Jr, Barnes DE, Shi Y, Volow AM, Shim JK, Alexander SC, Sudore RL
American Journal Of Clinical Pathology

Cost of Unnecessary Amylase and Lipase Testing at Multiple Academic Health Systems

Ritter JP, Ghirimoldi FM, Manuel LSM, Moffett EE, Novicki TJ, McClay JC, Shireman PK, Brimhall BB
Annals of Palliative Medicine

Optimizing future planning in Parkinson disease: suggestions for a comprehensive roadmap from patients and care partners

Jordan SR, Kluger B, Ayele R, Brungardt A, Hall A, Jones J, Katz M, Miyasaki JM, Lum HD
Research Involvement and Engagement

A community-driven and evidence-based approach to developing mental wellness strategies in First Nations: a program protocol

Morton Ninomiya M, George NP, George J, Linklater R, Bull J, Plain S, Graham K, Bernards S, Peach L, Stergiopoulos V, Kurdyak P, McKinley G, Donnelly P, Wells S
Journal of Patient-Reported Outcomes

Development and content validation of two new patient-reported outcome measures for endometriosis: the Endometriosis Symptom Diary (ESD) and Endometriosis Impact Scale (EIS)

Gater A, Taylor F, Seitz C, Gerlinger C, Wichmann K, Haberland C
Research Involvement and Engagement

Development and formative evaluation of patient research partner involvement in a multi-disciplinary European translational research project

Birch R, Simons G, Wähämaa H, McGrath CM, Johansson EC, Skingle D, Bayliss K, Starling B, Gerlag DM, Buckley CD, Stack RJ, Raza K, Falahee M
Research Involvement and Engagement

Patient-oriented research competencies in health (PORCH) for researchers, patients, healthcare providers, and decision-makers: results of a scoping review

Frisch N, Atherton P, Doyle-Waters MM, MacLeod MLP, Mallidou A, Sheane V, Ward J, Woodley J
Research Involvement and Engagement

The Canadian retinoblastoma research advisory board: a framework for patient engagement

Gelkopf MJ, Avramov I, Baddeliyanage R, Ristevski I, Johnson SA, Flegg K, Dimaras H