Engagement in Health Research Literature Explorer

Finding literature on engagement in health research can be challenging, because there are no standard search terms or language for describing what engagement means in this context. So, PCORI staff members have put together a searchable list of publications on engagement in health research, selected through a process described here.

This resource is sortable by article topic type, types of stakeholders engaged, and phase(s) of research in which engagement occurred, from identifying research questions to sharing study results. Articles are listed if they met our search and inclusion criteria.

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Displaying 11 - 20 of 2211 results
 
JMIR Formative Research

Educational Needs and Preferences for Patient-Centered Outcomes Research in the Cystic Fibrosis Community: Mixed Methods Study

Godfrey EM, Kazmerski TM, Brown G, Thayer EK, Mentch L, Pam M, Al Achkar M
Journal of Participatory Medicine

Best Practices for Virtual Engagement of Patient-Centered Outcomes Research Teams During and After the COVID-19 Pandemic: Qualitative Study

Thayer EK, Pam M, Al Achkar M, Mentch L, Brown G, Kazmerski TM, Godfrey E
Journal of Medical Internet Research

An 11-Item Measure of User- and Human-Centered Design for Personal Health Tools (UCD-11): Development and Validation

Witteman HO, Vaisson G, Provencher T, Chipenda Dansokho S, Colquhoun H, Dugas M, Fagerlin A, Giguere AM, Haslett L, Hoffman A, Ivers NM, Légaré F, Trottier ME, Stacey D, Volk RJ, Renaud JS
Research Involvement and Engagement

The practice of active patient involvement in rare disease research using ICT: experiences and lessons from the RUDY JAPAN project

Hamakawa N, Kogetsu A, Isono M, Yamasaki C, Manabe S, Takeda T, Iwamoto K, Kubota T, Barrett J, Gray N, Turner A, Teare H, Imamura Y, Yamamoto BA, Kaye J, Hide M, Takahashi MP, Matsumura Y, Javaid MK, Kato K
Research Involvement and Engagement

Developing a Canadian evaluation framework for patient and public engagement in research: study protocol

L'Espérance A, O'Brien N, Grégoire A, Abelson J, Canfield C, Del Grande C, Dogba MJ, Fancott C, Levasseur MA, Loignon C, Majnemer A, Pomey MP, Rasiah J, Salsberg J, Santana M, Tremblay MC, Urquhart R, Boivin A
British Journal of Anaesthesia

Engaging patients as partners in a multicentre trial of spinal versus general anaesthesia for older adults

Hruslinski J, Menio DA, Hymes RA, Jaffe JD, Langlois C, Ramsey L, Gaskins LJ, Neuman MD; Regional Versus General Anesthesia for Promoting Independence After Hip Fracture Investigators
Contemporary Clinical Trials

Improving transition from inpatient rehabilitation following traumatic brain injury: Protocol for the BRITE pragmatic comparative effectiveness trial

Fann JR, Hart T, Ciol MA, Moore M, Bogner J, Corrigan JD, Dams-O'Connor K, Driver S, Dubiel R, Hammond FM, Kajankova M, Watanabe TK, Hoffman JM
The Journal of Head Trauma Rehabilitation

Quasi-Contextualized Speech Treatment in Traumatic Brain Injury Inpatient Rehabilitation: Effects on Outcomes During the First Year After Discharge

Beaulieu CL, Peng J, Hade EM, Montgomery E, Gilchrist K, Corrigan JD, Horn SD, Bogner J
Psychiatric services (Washington, D.C.)

Integrating Stakeholder Engagement With Claims-Based Research on Health Insurance Design and Bipolar Disorder

Madden JM, Foxworth PM, Ross-Degnan D, Allen KG, Busch AB, Callahan MX, Lu CY, Wharam JF
Western Journal of Nursing Research

Partnering to Increase Colorectal Cancer Screening: Perspectives of Community Advisory Board Members

Rawl SM, Bailey S, Cork B, Fields M, Griffin T, Haunert L, Kline J, Krier C, Lagunes J, Lambert RL, Malloy C, Quick J, Shedd-Steele R, Strom S, Carter-Harris L