Engagement in Health Research Literature Explorer

Finding literature on engagement in health research can be challenging, because there are no standard search terms or language for describing what engagement means in this context. So, PCORI staff members have put together a searchable list of publications on engagement in health research, selected through a process described here.

This resource is sortable by article topic type, types of stakeholders engaged, and phase(s) of research in which engagement occurred, from identifying research questions to sharing study results. Articles are listed if they met our search and inclusion criteria.

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Displaying 11 - 20 of 1582 results
 
Research Involvement and Engagement

Comments on: involving service users in the qualitative analysis of patient narratives to support healthcare quality improvement

Williams M, Etkind M, Husson F, Ogunleye D, Norton J
Research Involvement and Engagement

Response to "comments on: involving service users in the qualitative analysis of patient narratives to support healthcare quality improvement"

Locock L, Kirkpatrick S, Brading L, Sturmey G, Cornwell J, Churchill N, Robert G
Journal of Patient-Reported Outcomes

Development and validation of the Axillary Sweating Daily Diary: a patient-reported outcome measure to assess axillary sweating severity

Nelson LM, DiBenedetti D, Pariser DM, Glaser DA, Herbert AA, Hofland H, Drew J, Ingolia D, Gillard KK, Fehnel S
The American journal of bioethics: AJOB

Partnering, Not Enduring: Citizen Science and Research Participation

Shonfeld T, Rasmussen M
Journal of Clinical Epidemiology

A benefit-harm analysis of adding basal insulin vs. sulfonylurea to metformin to manage type II diabetes mellitus in people with multiple chronic conditions

Bennett WL, Aschmann HE, Puhan MA, Robbins CW, Bayliss EA, Wilson R, Mularski RA, Chan WV, Leff B, Sheehan O, Glover C, Maslow K, Armacost K, Mintz S, Boyd CM
Contemporary Clinical Trials

A comparative effectiveness trial of two family-based childhood obesity treatment programs in a medically underserved region: Rationale, design & methods

Zoellner JM, You W, Hill JL, Brock DP, Yuhas M, Alexander RC, Price B, Estabrooks PA
Critical Care Medicine

Promoting Family Engagement in the ICU: Experience From a National Collaborative of 63 ICUs

Kleinpell R, Zimmerman J, Vermoch KL, Harmon LA, Vondracek H, Hamilton R, Hanson B, Hwang DY
Journal of the American Board of Family Medicine: JABFM

Patient-Centered Research Priorities: A Mixed-Methods Approach from the Colorado Children's Outcomes Network (COCONet)

Brewer SE, Crump NM, O'Leary ST
Journal of community psychology

Content validation of a quantitative stakeholder engagement measure

Goodman MS, Ackermann N, Bowen DJ, Thompson V
Implementation Science

Implementation of the uterine fibroids Option Grid patient decision aids across five organizational settings: a randomized stepped-wedge study protocol

Scalia P, Durand MA, Forcino RC, Schubbe D, Barr PJ, O'Brien N, O'Malley AJ, Foster T, Politi MC, Laughlin-Tommaso S, Banks E, Madden T, Anchan RM, Aarts JWM, Velentgas P, Balls-Berry J, Bacon C, Adams-Foster M, Mulligan CC, Venable S, Cochran NE, Elwyn G