Engagement in Health Research Literature Explorer

Finding literature on engagement in health research can be challenging, because there are no standard search terms or language for describing what engagement means in this context. So, PCORI staff members have put together a searchable list of publications on engagement in health research, selected through a process described here.

This resource is sortable by article topic type, types of stakeholders engaged, and phase(s) of research in which engagement occurred, from identifying research questions to sharing study results. Articles are listed if they met our search and inclusion criteria.

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Displaying 11 - 20 of 1683 results
 
Journal of Palliative Medicine

Virtual Research Stakeholder Groups with Isolated Homebound Elders and Caregivers: Lessons Learned Relevant to Research during Pandemics

Harrison KL, Leff B, Garrigues SK, England ALE, Perissinotto CM, Sheehan OC, Mickler AK, Basyal PS, Ritchie CS
Metropolitan Universities Journal

Promoting Public Good and Wellness from the Perspective of a Midwestern Regional Baptist Church Community-led Research Engagement Partnership

Johnson R, Ingram D, Gordon S, Davis P
American journal of kidney diseases : the official journal of the National Kidney Foundation

The National Kidney Foundation's Efforts to Improve and Increase Patient-Centered CKD Research

Browne T, Forfang D, Bethel S, Joseph J, Brereton L, Damron KC
Journal of Patient-Reported Outcomes

Development and internal validation of a predictive risk model for anxiety after completion of treatment for early stage breast cancer

Harris J, Purssell E, Cornelius V, Ream E, Jones A, Armes J
Western Journal of Nursing Research

Meaningful Engagement of Patient Advisors in Research: Towards Mutually Beneficial Relationships

Young HM, Miyamoto S, Henderson S, Dharmar M, Hitchcock M, Fazio S, Tang-Feldman Y
International journal of technology assessment in healthcare

Patient and caregiver engagement in the Patient-Centered Outcomes Research Institute (PCORI) Health Care Horizon Scanning System (HCHSS) process

Tipton K, De Lurio J, Erinoff E, Hulshizer R, Robertson D, Beales D, Carlson D, Cuevas C, DeHaan E, Druga A, Lynch M, Mehta M, Middleton M, Wilkinson B, Schoelles K
Journal of the Amercan Pharmacists Association : JAPhA

Formation of a statewide community pharmacy practice-based research network: Pharmacist opinions on research participation and engagement

Li JS, Blake V, George S, Carroll JC, Somma McGivney MA, Coley KC
Progress in community health partnerships : research, education, and action

Patient Advisory Committee for a Chronic Opioid Therapy Risk Reduction Evaluation: Engaging Diverse Patients

Evette J L, Addis M, Cartwright C, Cowan P, Duhrkoop D, Farrell M, Giudice-Tompson A, Guthrie K, Lippincott C, Sokolnicki M, Tully B, Von Korff M
The Journal of Pain

The Concerns About Pain (CAP) Scale: A Patient-Reported Outcome Measure of Pain Catastrophizing

Amtmann D, Bamer AM, Liljenquist KS, Cowan P, Salem R, Turk DC, Jensen MP
Journal of the American College of Radiology : JACR

Guidelines for the Evaluation of Pulmonary Nodules Detected Incidentally or by Screening: A Survey of Radiologist Awareness, Agreement, and Adherence From the Watch the Spot Trial

Gould MK, Altman DE, Creekmur B, Qi L, de Bie E, Golden S, Kaplan CP, Kelly K, Miglioretti DL, Mularski RA, Musigdilok VV, Smith-Bindman R, Steltz JP, Wiener RS, Aberle DR, Dyer DS, Vachani A