Engagement in Health Research Literature Explorer

Finding literature on engagement in health research can be challenging, because there are no standard search terms or language for describing what engagement means in this context. So, PCORI staff members have put together a searchable list of publications on engagement in health research, selected through a process described here.

This resource is sortable by article topic type, types of stakeholders engaged, and phase(s) of research in which engagement occurred, from identifying research questions to sharing study results. Articles are listed if they met our search and inclusion criteria.

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Displaying 21 - 30 of 1608 results
 
Journal of Veterans Studies

Protective Factors for Suicide: A Multi-Tiered Veteran-Driven Community Engagement Project

Krause-Parello CA, Rice MJ, Sarni S, LoFaro C, Niitsu K, McHenry-Edrington M, Blanchard K
Contemporary Clinical Trials

Rationale and design of a randomized pragmatic trial of patient-centered models of hepatitis C treatment for people who inject drugs: The HERO study

Litwin AH, Jost J, Wagner K, Heo M, Karasz A, Feinberg J, Kim AY, Lum PJ, Mehta SH, Taylor LE, Tsui JI, Pericot-Valverde I, Page K, HERO Study Group.
Journal of General Internal Medicine

Engaging Patients and Other Non-Researchers in Health Research: Defining Research Engagement

Frank L, Morton SC, Guise JM, Jull J, Concannon TW, Tugwell P
The Gerontologist

Preparation and Planning for Future Care in the Deep South: Adapting a Validated Tool for Cultural Sensitivity

Allen RS, Oliver JS, Eichorst MK, Mieskowski L, Payne-Foster P, Sörensen S
JAMIA Open

Use of patient-generated health data across healthcare settings: implications for health systems

Austin E, Lee JR, Amtmann D, Bloch R, Lawrence SO, McCall D, Munson SA, Nery-Hurwit M, Lavallee DC
Community dental health

Child involvement in oral health education interventions - a systematic review of randomised controlled studies

Hakojärvi HR, Selänne L, Salanterä S
Research Involvement and Engagement

Combining qualitative research with PPI: reflections on using the person-based approach for developing behavioural interventions

Muller I, Santer M, Morrison L, Morton K, Roberts A, Rice C, Williams M, Yardley L
Journal of Patient-Reported Outcomes

Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME): cognitive interviews with children.

Parslow RM, Shaw A, Haywood KL, Crawley E
Research Involvement and Engagement

Engaging children and families in pediatric Health Research: a scoping review

Flynn R, Walton S, Scott SD
Research Involvement and Engagement

How helpful are Patient and Public Involvement strategic documents - Results of a framework analysis using 4Pi National Involvement Standards

Matthews R, Kaur M, French C, Baker A, Reed J