Skip to main content
Patient-Centered Outcomes Research Institute
Patient-Centered Outcomes Research Institute
  • Blog
  • Newsroom
  • Find It Fast
  • Help Center
  • Subscribe
  • Careers
  • Contact Us

PCORI

Patient-Centered Outcomes Research Institute

Search form

  • About Us
    Close mega-menu

    About Us

    • Our Programs
    • Governance
    • Financials and Reports
    • Procurement Opportunities
    • Our Staff
    • Our Vision & Mission
    • Contact Us

    Fact Sheets: Learn More About PCORI

    Download fact sheets about out work, the research we fund, and our programs and initiatives.

    Find It Fast

    Browse through an alphabetical list of frequently accessed and searched terms for information and resources.

    Subscribe to PCORI Email Alerts

    Sign up for weekly emails to stay current on the latest results of our funded projects, and more.

  • Research & Results
    Close mega-menu

    Research & Results

    • Explore Our Portfolio
    • Evaluating Our Work
    • Research Results Highlights
    • Putting Evidence to Work
    • Peer Review
    • Evidence Synthesis
    • About Our Research

    Evidence Updates from PCORI-Funded Studies

    These updates capture highlights of findings from systematic reviews and our funded research studies.

    Journal Articles About Our Funded Research

    Browse through a collection of journal publications that provides insights into PCORI-funded work.

    Explore Our Portfolio of Funded Projects

    Find out about projects based on the health conditions they focus on, the state they are in, and if they have results.

  • Topics
    Close mega-menu

    Topics

    • Addressing Disparities
    • Arthritis
    • Asthma
    • Cancer
    • Cardiovascular Disease
    • Children's Health
    • Community Health Workers
    • COVID-19
    • Dementia and Cognitive Impairment
    • Diabetes
    • Intellectual and/or Developmental Disabilities
    • Kidney Disease
    • Maternal Morbidity and Mortality
    • Medicaid
    • Men's Health
    • Mental and Behavioral Health
    • Minority Mental Health
    • Multiple Chronic Conditions
    • Multiple Sclerosis
    • Obesity
    • Older Adults' Health
    • Pain Care and Opioids
    • Rare Diseases
    • Rural Health
    • Shared Decision Making
    • Telehealth
    • Transitional Care
    • Veterans Health
    • Women's Health

    Featured Topic: Women's Health

    Learn more about the projects we support on conditions that specifically or more often affect women.

  • Engagement
    Close mega-menu

    Engagement

    • The Value of Engagement
    • Engagement in Health Research Literature Explorer
    • Influencing the Culture of Research
    • Engagement Awards
    • Engagement Resources
    • Engage with Us

    Engagement Tools and Resources for Research

    This searchable peer-to-peer repository includes resources that can inform future work in patient-centered outcomes research.

    Engagement Awards

    Learn about our Engagement Awards program and view the announcements of all our open funding opportunities.

    Research Fundamentals: A New On-Demand Training

    It enables those new to health research or patient-centered research to learn more about the research process.

  • Funding Opportunities
    Close mega-menu

    Funding Opportunities

    • What & Who We Fund
    • What You Need to Know to Apply
    • Applicant Training
    • Merit Review
    • Awardee Resources
    • Help Center

    PCORI Funding Opportunities

    View and learn about the newly opened funding announcements and the upcoming PFAs in 2021.

    Tips for Submitting a Responsive LOI

    Find out what PCORI looks for in a letter of intent (LOI) along with other helpful tips.

    PCORI Awardee Resources

    These resources can help awardees in complying with the terms and conditions of their contract.

  • Meetings & Events
    Close mega-menu

    Meetings & Events

    • Upcoming
    • Past Events

    PCORI 2021 and Beyond

    During this webinar, PCORI leaders shared ways to get involved in PCOR, improvements to our funding opportunities, and more.

    2020 PCORI Annual Meeting

    Watch recordings of sessions and view titles and descriptions of posters presented at the virtual meeting.

    Board Approves Future PFA Topics at April Meeting

    The more than a dozen high-priority research topics will be considered for PCORI Funding Announcements (PFAs) that will be released this fall and in 2022.

You are here

  • Engagement
  • Engagement in Health Research Literat...

Engagement in Health Research Literature Explorer

Finding literature on engagement in health research can be challenging, because there are no standard search terms or language for describing what engagement means in this context. So, PCORI staff members have put together a searchable list of publications on engagement in health research, selected through a process described here.

This resource is sortable by article topic type, types of stakeholders engaged, and phase(s) of research in which engagement occurred, from identifying research questions to sharing study results. Articles are listed if they met our search and inclusion criteria.

Download a List of These Journal Citations

Browse Citations

Displaying 21 - 30 of 1683 results
 
International Journal of Transgender Health

Pregnancy intentions and outcomes among transgender, nonbinary, and gender-expansive people assigned female or intersex at birth in the United States: Results from a national, quantitative survey

Moseson H, Fix L, Hastings J, Stoeffler A, Lunn MR, Flentje A, Lubensky ME, Capriotti MR, Ragosta S, Forsberg H, Obedin-Maliver J
Cancer

What matters most: Randomized controlled trial of breast cancer surgery conversation aids across socioeconomic strata

Durand MA, Yen RW, O'Malley AJ, Schubbe D, Politi MC, Saunders CH, Dhage S, Rosenkranz K, Margenthaler J, Tosteson ANA, Crayton E, Jackson S, Bradley A, Walling L, Marx CM, Volk RJ, Sepucha K, Ozanne E, Percac-Lima S, Bergin E, Goodwin C, Miller C, Harris C, Barth RJ Jr, Aft R, Feldman S, Cyr AE, Angeles CV, Jiang S, Elwyn G
Research Involvement and Engagement

Patient involvement in preparing health research peer-reviewed publications or results summaries: a systematic review and evidence-based recommendations

Arnstein L, Wadsworth AC, Yamamoto BA, Stephens R, Sehmi K, Jones R, Sargent A, Gegeny T, Woolley KL
Applied ergonomics

A practical model for research with learning health systems: Building and implementing effective complex case management

Smith MA, Nordby PA, Yu M, Jaffery J
Breast (Edinburgh, Scotland)

Evaluation of existing patient educational materials and development of a brochure for women with dense breasts

Warner ET, Kennedy M, Maschke A, Hopkins MF, Wernli K, Gunn CM
Research Involvement and Engagement

Being involved in research as a collaborator with experience of a prenatal diagnosis of congenital heart defect in the fetus: a qualitative study

Carlsson T, Marttala UM, Mattsson E
British journal of sports medicine

High intensity exercise for 3 months reduces disease activity in axial spondyloarthritis (axSpA): a multicentre randomised trial of 100 patients

Sveaas SH, Bilberg A, Berg IJ, Provan SA, Rollefstad S, Semb AG, Hagen KB, Johansen MW, Pedersen E, Dagfinrud H
Research Involvement and Engagement

Parenting Science Gang: radical co-creation of research projects led by parents of young children

Collins S, Brueton R, Greenough Graham T, Organ S, Strother A, West SE, McKendree J
Research Involvement and Engagement

Public involvement in health research: what does ‘good’ look like in practice?

Liabo K, Boddy K, Bortoli S, Irvine J, Boult H, Fredlund M, Joseph N, Bjornstad G, Morris C
JAMA Cardiology

Rationale and Design of the Aspirin Dosing-A Patient-Centric Trial Assessing Benefits and Long-term Effectiveness (ADAPTABLE) Trial

Marquis-Gravel G, Roe MT, Robertson HR, Harrington RA, Pencina MJ, Berdan LG, Hammill BG, Faulkner M, Muñoz D, Fonarow GC, Nallamothu BK, Fintel DJ, Ford DE, Zhou L, Daugherty SE, Nauman E, Kraschnewski J, Ahmad FS, Benziger CP, Haynes K, Merritt JG, Metkus T, Kripalani S, Gupta K, Shah RC, McClay JC, Re RN, Geary C, Lampert BC, Bradley SM, Jain SK, Seifein H, Whittle J, Roger VL, Effron MB, Alvarado G, Goldberg YH, VanWormer JL, Girotra S, Farrehi P, McTigue KM, Rothman R, Hernandez AF, Jones WS

Pages

  • |«
  • ‹
  • …
  • Page 2
  • Currently on page 3
  • Page 4
  • …
  • ›
  • »|

Refine Your Results

Topic

  • Example of Engagement in Health Research (707) Apply Example of Engagement in Health Research filter
  • Detailed Description of Engagement in Health Research (436) Apply Detailed Description of Engagement in Health Research filter
  • Editorial/Commentary (225) Apply Editorial/Commentary filter
  • Evidence for Engagement (215) Apply Evidence for Engagement filter
  • Model/Framework (44) Apply Model/Framework filter
  • 526 (1) Apply 526 filter

Stakeholder Involvement

  • Patients (1051) Apply Patients filter
  • Clinicians (744) Apply Clinicians filter
  • Caregivers (455) Apply Caregivers filter
  • Hospitals/Health Systems (369) Apply Hospitals/Health Systems filter
  • Learning Institutions (336) Apply Learning Institutions filter
  • Policymakers (223) Apply Policymakers filter
  • Other (120) Apply Other filter
  • Payers (91) Apply Payers filter
  • Industry (77) Apply Industry filter
  • Purchasers (36) Apply Purchasers filter

Phases of Research Engagement

  • Participant Recruitment/Retention (590) Apply Participant Recruitment/Retention filter
  • Study Outcomes (500) Apply Study Outcomes filter
  • Results Review/Analysis (481) Apply Results Review/Analysis filter
  • Research Topic/Agenda (468) Apply Research Topic/Agenda filter
  • Study Comparators (465) Apply Study Comparators filter
  • Data Collection (440) Apply Data Collection filter
  • Research Questions/Aims (429) Apply Research Questions/Aims filter
  • Dissemination (373) Apply Dissemination filter
  • Study Design (225) Apply Study Design filter
  • Translation (205) Apply Translation filter
  • Study Comparators/Content (176) Apply Study Comparators/Content filter
  • Study/Project Design (13) Apply Study/Project Design filter

Year

  • 2021 (11) Apply 2021 filter
  • 2020 (51) Apply 2020 filter
  • 2019 (233) Apply 2019 filter
  • 2018 (174) Apply 2018 filter
  • 2017 (211) Apply 2017 filter
  • 2016 (169) Apply 2016 filter
  • 2015 (238) Apply 2015 filter
  • 2014 (152) Apply 2014 filter
  • 2013 (140) Apply 2013 filter
  • 2012 (135) Apply 2012 filter
  • 2011 (35) Apply 2011 filter
  • 2010 (25) Apply 2010 filter
  • 2009 (20) Apply 2009 filter
  • 2008 (16) Apply 2008 filter
  • 2007 (14) Apply 2007 filter
  • 2006 (16) Apply 2006 filter
  • 2005 (16) Apply 2005 filter
  • 2004 (7) Apply 2004 filter
  • 2003 (7) Apply 2003 filter
  • 2002 (3) Apply 2002 filter
  • 2001 (2) Apply 2001 filter
  • 1998 (3) Apply 1998 filter
  • 1995 (2) Apply 1995 filter

About Us

  • Our Programs
  • Governance
  • Financials and Reports
  • Procurement Opportunities
  • Our Staff
  • Our Vision & Mission
  • Contact Us

Research & Results

  • Explore Our Portfolio
  • Evaluating Our Work
  • Research Results Highlights
  • Putting Evidence to Work
  • Peer Review
  • Evidence Synthesis
  • About Our Research

Engagement

  • The Value of Engagement
  • Engagement in Health Research Literature Explorer
  • Influencing the Culture of Research
  • Engagement Awards
  • Engagement Resources
  • Engage with Us

Funding Opportunities

  • What & Who We Fund
  • What You Need to Know to Apply
  • Applicant Training
  • Merit Review
  • Awardee Resources
  • Help Center

Meetings & Events

April 27
Priorities on the Health Horizon: Informing PCORI's Strategic Plan (Webinar #2)
May 6
Advisory Panel on Healthcare Delivery and Disparities Research Spring 2021 Meeting
May 10
Cycle 2 2021 Nonsurgical Options for Women with Urinary Incontinence -- Applicant Town Hall

PCORI

Footer contact address

Patient-Centered Outcomes
Research Institute

1828 L Street, NW, Suite 900
Washington, DC 20036
Phone: (202) 827-7700 | Fax: (202) 355-9558
info@pcori.org

Subscribe to Newsletter

Twitter Facebook LinkedIn Vimeo

© 2011-2021 Patient-Centered Outcomes Research Institute. All Rights Reserved.

Privacy Policy | Terms of Use | Trademark Usage Guidelines | Credits | Help Center