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PCORI

Patient-Centered Outcomes Research Institute

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    About Us

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    Fact Sheets: Learn More About PCORI

    Download fact sheets about out work, the research we fund, and our programs and initiatives.

    Find It Fast

    Browse through an alphabetical list of frequently accessed and searched terms for information and resources.

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    Research & Results

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    • Putting Evidence to Work
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    Evidence Updates from PCORI-Funded Studies

    These updates capture highlights of findings from systematic reviews and our funded research studies.

    Journal Articles About Our Funded Research

    Browse through a collection of journal publications that provides insights into PCORI-funded work.

    Explore Our Portfolio of Funded Projects

    Find out about projects based on the health conditions they focus on, the state they are in, and if they have results.

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    Topics

    • Addressing Disparities
    • Arthritis
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    • Dementia and Cognitive Impairment
    • Diabetes
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    • Medicaid
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    • Multiple Chronic Conditions
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    Featured Topic: Women's Health

    Learn more about the projects we support on conditions that specifically or more often affect women.

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    Engagement

    • The Value of Engagement
    • Engagement in Health Research Literature Explorer
    • Influencing the Culture of Research
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    • Engage with Us

    Engagement Tools and Resources for Research

    This searchable peer-to-peer repository includes resources that can inform future work in patient-centered outcomes research.

    Explore Engagement in Health Literature

    This tool enables searching for published articles about engagement in health research.

    Research Fundamentals: A New On-Demand Training

    It enables those new to health research or patient-centered research to learn more about the research process.

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    Funding Opportunities

    • What & Who We Fund
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    PCORI Funding Opportunities

    View and learn about the newly opened funding announcements and the upcoming PFAs in 2021.

    Tips for Submitting a Responsive LOI

    Find out what PCORI looks for in a letter of intent (LOI) along with other helpful tips.

    PCORI Awardee Resources

    These resources can help awardees in complying with the terms and conditions of their contract.

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    Meetings & Events

    • Upcoming
    • Past Events

    PCORI Webinar: February 2, 2pm ET

    Hear from PCORI leaders about ways to get involved in PCOR, improvements to our funding opportunities, and more. Register

    Confronting COVID-19: A Webinar Series

    Learn more about the series and access recordings and summary reports of all six sessions.

    2020 PCORI Annual Meeting

    Watch recordings of all sessions, and view titles and descriptions of the posters presented at the virtual meeting.

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  • Engagement
  • Engagement Resources

Engagement Resources

Research Fundamentals: Preparing You to Successfully Contribute to Research

People new to health research or patient-centered research have many questions: What is patient-centered outcomes research? How does the research process work?  How can I be an effective partner on a research study?

To help answer these questions, PCORI's new on-demand training is designed for those who want to learn more about the research process. Research Fundamentals is a self-paced training that uses plain language to describe patient-centered outcomes research. It can help everyone, regardless of experience, engage and contribute with confidence. The modular format and downloadable glossary will help users quickly and easily apply what they’ve learned.

View Research Fundamentals

Engagement Tool and Resource Repository for Patient-Centered Outcomes Research

Two people looking at a computer screen with business analytics and financial charts.

PCORI is committed to advancing patient-centered, stakeholder-engaged research and the meaningful involvement of patients, caregivers, clinicians, and other healthcare stakeholders throughout the entire research process. We do this to ensure that the results of the studies we fund are relevant, trustworthy, and more likely to be used in practice. PCORI also supports the uptake of engagement practices and methodologies within the broader healthcare research community.

To encourage the spread of these practices, this searchable peer-to-peer repository contains engagement-related tools and resources developed and used by PCORI awardees. It includes resources that can inform future work in patient-centered outcomes research (PCOR).

View the Repository

Engagement Plan

Effective engagement of patients and stakeholders in research requires a well-thought-out plan. Therefore, all applications for PCORI research funding must include an Engagement Plan that outlines how stakeholder partners will be involved in all phases of the study.

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PCORI Blog: Putting PCORI's Updated Engagement Plan Template to Work in Research

The Engagement Plan must be included in all PCORI applications to describe how the research team will be responsive to Criterion 6—Patient and stakeholder engagement—under PCORI's Merit Review Criteria for funding. The Engagement Plan is evaluated as part of the research award application in the merit review process to assess the patient centeredness and engagement elements of the proposed research study.

Many aspects of an engagement plan may change or evolve between the submission of the research application and the start of the study. These changes may reflect a refinement in thinking about the study’s needs and could result in changes to the composition of the stakeholders who are involved, the restructuring of advisory boards and governance committees, or the methods for engaging stakeholders and evaluating engagement.

Recognizing that engagement methods may evolve, PCORI awardees submit a more robust engagement design using PCORI's Updated Engagement Plan template within the project’s first six months. Sample updated engagement plans are available for PCORI awardees upon request.

View the Engagement Plan Template

PCORI Engagement Rubric

PCORI's Engagement Rubric, developed collaboratively with our Advisory Panel on Patient Engagement, provides guidance on methods for engaging stakeholder partners throughout each phase of a research study.

How can researchers use the Engagement Rubric as a blueprint for implementing engagement strategies in the research process?

The Engagement Rubric identifies opportunities for stakeholder engagement in the three phases of the research project—planning, conduct, and the dissemination of results—and is grounded in a set of principles that lay a foundation for equitable partnerships. It includes real-world examples of engagement strategies and activities drawn from our research portfolio. While not prescriptive, the Engagement Rubric provides guidance to applicants for PCORI funding about potential engagement approaches to consider.

Since 2014, when the Engagement Rubric was developed, it has become an influential resource as the practice of engagement has grown.

PCORI is in the process of updating and enhancing the Engagement Rubric. The next version will incorporate findings from evaluations of our research portfolio and practice-based knowledge to incorporate evidence-based guidance for meaningful engagement, broaden the spectrum of research partner involvement, and to more explicitly address the needs of different stakeholder audiences.

View the Engagement Rubric

Fact Sheets
Learn more about PCORI's focus on patient & stakeholder engagement.

Better Research Through Engagement
Find out what we mean by engagement, how PCORI engages patients and other healthcare stakeholders, and how we encourage others to do so.

Engagement Challenges, Strategies, and Resources
Read about some of the challenges that are shared by awardees and stakeholder partners and those that are unique to each group.

Roles of Patient and Stakeholder Partners in Patient-Centered Research
Learn how researchers and partners work together to conduct patient-centered research

Research Done Differently
We're committed to a new approach to health research. Learn how it’s different.

Initiating Partnerships for Patient-Centered Research
Find out how PCORI shares lessons on the ways researchers can engage with patients and other healthcare stakeholders to improve patient-centered research.

Compensation Framework

PCORI’s Compensation Framework provides guidance for establishing fair compensation levels for patients, caregivers, and organizations. While it is expected that research partners are compensated for their expertise, time and contributions, researchers may have difficulty determining the appropriate levels and methods of compensation for varied contributions to the study.

PCORI’s Compensation Framework directs researchers to consider the intensity of partner involvement according to the activities and the roles and responsibilities of engaged partners.

View the Compensation Framework

PCORI in Practice Webinars

PCORI developed an ongoing series of webinars about advancing patient-centered outcomes research that are designed to:

  • Present examples of promising practices of meaningful engagement in all stages of the research process, featuring PCORI-funded researchers and other stakeholder partners
  • Demonstrate our unique approach to research done differently by highlighting our programs and initiatives
  • Feature PCORI-funded projects that address unmet needs of patients, caregivers, clinicians, and other healthcare stakeholders in making personalized clinical decisions across a wide range of conditions, populations, and treatment options
  • Highlight the fundamental role that meaningful engagement of patients and other healthcare stakeholders plays in our work, and how you and your community can get involved

Please take a look at our archived webinars, as they provide both theoretical and practical guidance on planning and conducting meaningful patient and stakeholder engagement in the research process.


Posted: October 30, 2018; Updated: September 16, 2019

About Us

  • Our Programs
  • Governance
  • Financials and Reports
  • Procurement Opportunities
  • Our Staff
  • Our Vision & Mission
  • Contact Us

Research & Results

  • Explore Our Portfolio
  • Research Fundamentals
  • Research Results Highlights
  • Putting Evidence to Work
  • Peer Review
  • Evidence Synthesis
  • About Our Research

Engagement

  • The Value of Engagement
  • Engagement in Health Research Literature Explorer
  • Influencing the Culture of Research
  • Engagement Awards
  • Engagement Resources
  • Engage with Us

Funding Opportunities

  • What & Who We Fund
  • What You Need to Know to Apply
  • Applicant Training
  • Merit Review
  • Awardee Resources
  • Help Center

Meetings & Events

February 2
PCORI 2021 and Beyond: Opportunities for Funding and Involvement in Patient-Centered Research
February 9
Board of Governors Meeting: February 9, 2021
February 11
Advisory Panel on Patient Engagement Winter 2021 Meeting

PCORI

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Patient-Centered Outcomes
Research Institute

1828 L Street, NW, Suite 900
Washington, DC 20036
Phone: (202) 827-7700 | Fax: (202) 355-9558
[email protected]

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