Personalized Medicine Coalition convened patients, patient advocates, caregivers, healthcare professionals and academic researchers in a two-year project to develop a patient-centered research agenda identifying evidence gaps that must be filled to ensure personalized medicine treatment strategies better align with priority patient outcomes. In the first year of the project, PMC organized a series of four web forums to develop a set of patient-centered principles to inform a research agenda. The agenda was then used to inform a group of 45 patients, researchers, and healthcare providers at an in-person roundtable in Washington, D.C., at which participants translated the principles into research objectives. The complete research agenda will be published in the form of a white paper.

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